Accepted for/Published in: JMIR Research Protocols
Date Submitted: Feb 2, 2022
Date Accepted: May 29, 2022
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Use and Experiences of Online Access to Electronic Health Records for parents, children, and adolescents: Protocol for a scoping review
ABSTRACT
Background:
As patient online access to electronic health records becomes the standard, implementation of access for adolescents and parents varies across providers, regions and countries. There is currently no international compilation of evidence to guide policy decisions in matters such as age limit for access and extent of parent proxy access.
Objective:
This paper outlines a scoping review of different stakeholders’ (including but not limited to end users) perspectives on use, opinions, and experiences of online access to electronic health records of parents, children, and adolescents.
Methods:
This scoping review will be conducted according to the Arksey and O’Malley (2005) framework. Several databases will be used to search for literature (PubMed, CINAHL, and PsycInfo). All authors will participate in screening of the identified papers, following the research question: ‘How do different stakeholders experience parents’ and children’s/adolescents’ online access to their electronic health records?’ Data abstraction will include, but not be limited to: publication type, publication year, country, sample characteristics, setting, study aim, research question, and conclusions.
Results:
This systematic scoping review protocol was first initiated by Uppsala University in June 2021, as part of the NordForsk funded research project NORDeHEALTH. The results are expected to be submitted in a systematic scoping review in June 2022.
Conclusions:
This is, to our knowledge, the first study to map the literature of use and experiences of online access to electronic health records of parents, children, and adolescents. The findings are expected to be useful for the design and implementation of future and regulations around access to patient accessible electronic health records. Clinical Trial: The results will be disseminated through stakeholder meetings, scientific conference presentations, as well as oral presentations to the public, and peer-reviewed publication. Data to be analyzed are from publicly available secondary sources, so this study does not require ethical review.
Citation
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