Accepted for/Published in: JMIR Research Protocols
Date Submitted: Feb 2, 2022
Date Accepted: May 29, 2022
Use and Experiences of Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review
ABSTRACT
Background:
As patient online access to electronic health records becomes the standard, implementation of access for adolescents and parents varies across providers, regions and countries. There is currently no international compilation of evidence to guide policy decisions in matters such as age limit for access and extent of parent proxy access.
Objective:
This paper outlines a scoping review of different stakeholders’ (including but not limited to end users) perspectives on use, opinions, and experiences of online access to electronic health records of parents, children, and adolescents.
Methods:
This scoping review will be conducted according to the Arksey and O’Malley (2005) framework. Several databases will be used to search for literature (PubMed, CINAHL, and PsycInfo), in addition to literature found outside of these databases. All authors will participate in screening of the identified papers, following the research question: ‘How do different stakeholders experience parents’ and adolescents’ online access to electronic health records of children and adolescents?’ Data abstraction will include, but not be limited to: publication type, publication year, country, sample characteristics, setting, study aim, research question, and conclusions.
Results:
The results from this scoping review will be presented in narrative form, and additional data on study characteristics will be presented in diagrams or tabular forms. This scoping review protocol was first initiated by Uppsala University in June 2021, as part of the NordForsk funded research project NORDeHEALTH. The results are expected to be submitted in a scoping review in June 2022.
Conclusions:
This is, to our knowledge, the first study to map the literature of use and experiences of parents’ and adolescents’ online access to electronic health records of children and adolescents. The findings will describe what benefits and risks have been experienced by different stakeholders so far in different countries. A mapping of studies could inform the design and implementation of future and regulations around access to patient accessible electronic health records. Clinical Trial: The results will be disseminated through stakeholder meetings, scientific conference presentations, as well as oral presentations to the public, and peer-reviewed publication. Data to be analyzed are from publicly available secondary sources, so this study does not require ethical review.
Citation
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Copyright
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