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Using Social Media for Clinical Research: A White Paper from the Brown-Lifespan Center for Digital Health
Elizabeth M. Goldberg;
Rochelle K. Rosen;
Don S. Dizon;
Kirsten J. Langdon;
Natalie M. Davoodi;
Tyler B. Wray;
Nicole R. Nugent;
Shira I. Dunsiger;
Megan L. Ranney
ABSTRACT
Social media integration into research has increased and 92% of American social media users state they would share their data with researchers. Yet, the potential of this data to transform health outcomes and the way clinical research is performed has been held back. The use of these technologies in research is dependent on investigators’ awareness of its potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a framework to expand social media use in clinical research.