JMIR Publications

ABSTRACT

Background:

Background:

A growing amount of health research uses social media data. Those critical of social media research often cite that it may be unrepresentative of the population, but the suitability of social media data in digital epidemiology is more nuanced. Identifying the demographics of social media users can help establish representativeness.

Objective:

Objectives: We sought to identify the different approaches or combination of approaches to extract race or ethnicity from social media and report on the challenges of using these methods.

Methods:

Methods:

We present a scoping review to identify the methods used to extract race or ethnicity from Twitter datasets. We searched 17 electronic databases and carried out reference checking and handsearching in order to identify relevant articles. Sifting of each record was undertaken independently by at least two researchers with any disagreement discussed. The included studies could be categorized by the methods the authors applied to extract race or ethnicity.

Results:

Results:

From 1249 records we identified 67 that met our inclusion criteria. The majority focus on US based users and English language tweets. A range of types of data were used including Twitter profile -pictures or information from bios (such as names or self-declarations), or location and/or content in the tweets themselves. A range of methodologies were used including using manual inference, linkage to census data, commercial software, language/dialect recognition and machine learning. Not all studies evaluated their methods. Those that did found accuracy to vary from 45% to 93% with significantly lower accuracy identifying non-white race categories. The inference of race/ethnicity raises important ethical questions which can be exacerbated by the data and methods used. The comparative accuracy of different methods is also largely unknown.

Conclusions:

Conclusion: There is no standard accepted approach or current guidelines for extracting or inferring race or ethnicity of Twitter users. Social media researchers must use careful interpretation of race or ethnicity and not over-promise what can be achieved, as even manual screening is a subjective, imperfect method. Future research should establish the accuracy of methods to inform evidence-based best practice guidelines for social media researchers, and be guided by concerns of equity and social justice.