Accepted for/Published in: JMIR Formative Research
Date Submitted: Dec 14, 2021
Open Peer Review Period: Dec 14, 2021 - Feb 8, 2022
Date Accepted: Mar 30, 2022
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
User Experiences with a Short Message Service-Based Illness Self-Management Intervention: A Mixed Methods Study
ABSTRACT
Background:
Limited access to mental health care services due to provider shortages, geographic limitations, and cost has driven the area of mobile health (mHealth) care to address these access gaps. Reports from the Cohen Veterans Network and National Council for Behavioral Health show that in states where mental health care is more accessible, there is still 38% of people who are not receiving the care they need. MHealth strategies help to provide care to individuals experiencing these barriers at lower cost and greater convenience, making mHealth a great resource to bridge the gap.
Objective:
We present a mixed-methods study to evaluate user experiences with the mental mHealth service, Cope Notes. Specifically, we aimed to investigate the following research questions: 1. How do Cope Notes users perceive the service as it relates to stigma, impact of the intervention, and perceived usefulness? 2. How do Cope Notes users rate the Cope Notes service and messaging along various dimensions of acceptability? 3. What is the relationship between Cope Notes message ratings and user personality and coping strategies? 4. What are user perspectives of ubiquitous sensing technologies, including integration of ubiquitous sensing for the improvement in timeliness of the intervention and quality of tailored content?
Methods:
We performed qualitative interviews with Cope Notes users (n=14) who have used the service for at least 30 days to evaluate their experience and usefulness of the service. These interviews were coded by two raters, and interrater reliability was calculated with SPSS at 61.8%. Additionally, participants completed quantitative measures, including a user experiences survey, personality inventory (Big Five-10), and coping assessment (Brief COPE).
Results:
We derived seven main overarching themes from our qualitative interviews: Likes/Perceived Benefits, Dislikes/Limitations, Suggested Changes, Stigma/Help Seeking, Perceptions of Ubiquitous Sensing, Cultural Sensitivity, and Alternative mHealth Resources. Exploratory analyses between acceptability ratings of Cope Notes and personality factors from BF-10 yielded statistically significant positive relationships between seeing oneself as someone who is generally trusting and various acceptability items, the most significant being item 7 (“I fully understood the sentiment behind Cope Notes Messages”) with (rs(10) = 0.82, P = .001). We also found statistically significant relationships between the acceptability items and Brief COPE items, with the strongest positive correlation between participants strongly endorsing coping by accepting the reality that an event has happened and acceptability item 7 (rs(8) = 0.86, P = .001).
Conclusions:
Our study found that Cope Notes subscribers appreciate the service for reframing and refocusing their mental wellness with statistically significant correlations between personality and the acceptability of the service. We found that some users prefer a more personalized experience with neutral to positive reactions to a potential companion app that continuously monitors user behavior via smartphone sensor readings to provide just-in-time interventions when users need it the most.
Citation
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.