Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Jul 11, 2021
Date Accepted: May 19, 2022
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
A Comprehensive Literature Search of Digital Health Technology Use in Neurological Conditions: Digital Tools to Promote Self-Management and Support
ABSTRACT
Background:
The use of digital health technology to promote and deliver post-diagnostic care in neurological conditions is becoming increasingly common. However, the range of digital tools available across different neurological conditions and how they facilitate self-management is unclear.
Objective:
We aimed to identify digital tools that promote self-management in neurological conditions, and to investigate their underlying functionality and salient clinical outcomes.
Methods:
We conducted a search of six databases (i.e. CINAHL, EMBASE, MEDLINE, PsycINFO, Web of Science, and the Cochrane Review) using free text and equivalent database-controlled vocabulary terms.
Results:
We identified 27 published articles reporting 17 self-management digital tools. Multiple sclerosis had the highest number of digital tools followed by epilepsy, stroke, and headache and migraine with a similar number, and then pain. The majority were aimed at patients with a minority for carers. There were five broad categories of functionality promoting self-management: 1) Knowledge and understanding; 2) Behaviour modification; 3) Self-management support; 4) Facilitating communication; and 5) Recording condition characteristics. Salient clinical outcomes included improvements in self-management, self-efficacy, coping, depression, and fatigue.
Conclusions:
There now exist numerous digital tools to support user self-management, yet relatively few are described in the literature. More research is needed to investigate their use, effectiveness and sustainability, and how this interacts with increasing disability, and their integration within formal neurological care environments. Clinical Trial: N/A
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