Accepted for/Published in: JMIR Dermatology
Date Submitted: May 21, 2021
Date Accepted: Nov 17, 2021
Date Submitted to PubMed: Aug 26, 2023
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Development of the CDQL: a comprehensive quality of life measure for patients with contact dermatitis
ABSTRACT
Background:
There is limited measurement and reporting of quality of life (QoL) outcomes in contact dermatitis (CD).
Objective:
The purpose of this study is to develop a standardized Contact Dermatitis Quality of Life index (CDQL).
Methods:
A list of 81 topics was compiled from review of QoL measures used previously in CD research. Two rounds of online Delphi surveys were sent to registrants of the 2018 American Contact Dermatitis Society meeting, asking that physicians rank the relevance of topics for measuring QoL in CD using a 4-point scale. Items met consensus for inclusion if at least 78% ranked them as relevant or very relevant and their median score was ≥3.25.
Results:
Thirty-four physicians completed the initial survey and 17 completed the follow-up survey. A total of 22 topics met consensus for inclusion in the CDQL, addressing symptoms, emotions, functions of daily living, social and physical functions, work/school functions, and treatment.
Conclusions:
The study was limited by few open-ended questions in the initial survey, lack of direct patient feedback, and long survey length, which likely contributed to lower survey participation. The CDQL is a comprehensive, CD-specific QoL measure developed on the basis of expert consensus via a modified Delphi process.
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