Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: May 21, 2021
Open Peer Review Period: May 21, 2021 - Jul 16, 2021
Date Accepted: Dec 22, 2021
Date Submitted to PubMed: Feb 1, 2022
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Disclosure of personal identifying information in studies of neighborhood contexts and patient outcomes.
ABSTRACT
Clinical epidemiology and patient-oriented health care research that incorporates neighborhood-level data is becoming increasingly common. A key step in conducting this research is converting patient address data to longitude and latitude data, a process known as geocoding. Several commonly used approaches to geocoding (e.g. the tidygeocoder R package) send patient addresses over the internet to online third party geocoding services. Here we describe how these approaches to geocoding disclose patient’s Personal Identifying Information (PII) and then how subsequent publication of the research findings discloses these same patient’s Protected Heath Information (PHI). We describe how these disclosures can occur and strategies to maintain patient privacy while studying neighborhood effects on patient outcomes.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.