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Alvarez-Perez Y, Perestelo-Perez L, Rivero-Santana A, Wägner A, Torres-Castaño A, Toledo-Chávarri A, Duarte-Díaz A, Alvarado-Martel D, Piccini B, Van den Broucke S, Vandenbosch J, González-González C, Perello M, Serrano-Aguilar P, IC-Health Project Consortium
Cocreation of Massive Open Online Courses to Improve Digital Health Literacy in Diabetes: Pilot Mixed Methods Study
Co-creation of Massive Open Online Courses to improve Digital Health Literacy in Diabetes: A Process Description
Yolanda Alvarez-Perez;
Lilisbeth Perestelo-Perez;
Amado Rivero-Santana;
Ana Wägner;
Alezandra Torres-Castaño;
Ana Toledo-Chávarri;
Andrea Duarte-Díaz;
Dácil Alvarado-Martel;
Barbara Piccini;
Stephan Van den Broucke;
Jessica Vandenbosch;
Carina González-González;
Michelle Perello;
Pedro Serrano-Aguilar;
IC-Health Project Consortium
ABSTRACT
Background:
Self-management education is a fundamental aspect in the health care of people with Diabetes Mellitus (DM) to develop the necessary skills for the improvement of health outcomes. Patients are required to have the competencies to manage electronic information resources, that is, an appropriate level of digital health literacy (DHL). The European project IC-Health aimed to improve DHL among people with DM, through the co-creation of a Massive Open Online Courses (MOOCs).
Objective:
We report the preliminary results obtained in three participating countries in IC-Health (Italy, Spain and Sweden) regarding: 1) the experience of the participants during the co-creation process of MOOCs; 2) perceived changes in their DHL level before and after using MOOCs; and 3) a preliminary assessment of the acceptability of MOOCs.
Methods:
The co-creation of the MOOCs included: 1) focus groups and group interviews with adults and adolescents with DM; and 2) the creation of independent Communities of Practice (CoPs) for Type 1 DM and Type 2 DM participants aimed to co-design the MOOCs. Quantitative measures of MOOCs’ acceptability, experience in the co-creation process and increase of DHL (dimensions of Finding, Understanding and Appraisal) were assessed.
Results:
Twenty eight participants with DM participated in focus groups and groups interviews. Participants with Type 2 DM were older and less empowered, had lower DHL and were less informed about their disease than participants with Type 1 DM. 149 participants made up the DM CoPs. A total of nine MOOCs were developed. The acceptability of the MOOCs and the co-creation experience were positively valued. There was a significant improvement in DHL both in adults and adolescents after using MOOCs (P-values < 0.001).
Conclusions:
Although the results presented on self-perceived DHL are preliminary and exploratory, they suggest that IC-Health MOOCs represent a promising tool for the medical care of DM, being able to help reduce the limitations associated with low DHL and other communication barriers in DM population
Citation
Please cite as:
Alvarez-Perez Y, Perestelo-Perez L, Rivero-Santana A, Wägner A, Torres-Castaño A, Toledo-Chávarri A, Duarte-Díaz A, Alvarado-Martel D, Piccini B, Van den Broucke S, Vandenbosch J, González-González C, Perello M, Serrano-Aguilar P, IC-Health Project Consortium
Cocreation of Massive Open Online Courses to Improve Digital Health Literacy in Diabetes: Pilot Mixed Methods Study