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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: May 10, 2021
Date Accepted: Nov 2, 2021

The final, peer-reviewed published version of this preprint can be found here:

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

MacKinnon KR, Kia H, Lacombe-Duncan A

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

J Med Internet Res 2021;23(12):e30315

DOI: 10.2196/30315

PMID: 34889739

PMCID: 8704107

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Examining TikTok’s potential for community-engaged, digital knowledge mobilization with trans and nonbinary communities: A tutorial

  • Kinnon Ross MacKinnon; 
  • Hannah Kia; 
  • Ashley Lacombe-Duncan

ABSTRACT

Social media are increasingly leveraged by researchers to engage in public debates and to rapidly disseminate research results to healthcare providers, healthcare users, policymakers, educators, and the general public. This tutorial article contributes to growing literature on the use of social media for digital knowledge mobilization, drawing particular attention to TikTok and its unique potential for collaborative knowledge mobilization with underserved communities who experience barriers to healthcare and health inequities. Setting the TikTok platform apart from other social media are unique audio-visual video editing tools, together with an impactful algorithm, making possible knowledge dissemination and exchange with large global audiences. As an exemplar, we discuss digital knowledge mobilization with transgender and nonbinary populations, a population who experience barriers to healthcare and who are engaged in significant peer-to-peer health information sharing online. To demonstrate, analytics data from 13 selected TikTok videos on the topic of gender-affirming medicine (e.g., cross-sex hormones and surgeries) research are presented to illustrate how knowledge is disseminated within the trans community via TikTok. Considerations for researchers planning to use TikTok for digital knowledge mobilization and other related community engagement are also discussed. These include: the limitations of TikTok analytics data for measuring knowledge mobilization; trans population-specific concerns related to community safety on social media; barriers to internet access; the spread of disinformation; and commercialization and intellectual property issues. This article concludes that TikTok is an innovative social media platform presenting possibilities to achieve transformative, community-engaged knowledge mobilization between researchers, underserved healthcare users, and their healthcare providers—all of which are necessary to achieve better healthcare and population health outcomes.


 Citation

Please cite as:

MacKinnon KR, Kia H, Lacombe-Duncan A

Examining TikTok’s Potential for Community-Engaged Digital Knowledge Mobilization With Equity-Seeking Groups

J Med Internet Res 2021;23(12):e30315

DOI: 10.2196/30315

PMID: 34889739

PMCID: 8704107

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