Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: May 10, 2021
Date Accepted: Nov 2, 2021
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Examining TikTok’s potential for community-engaged, digital knowledge mobilization with trans and nonbinary communities: A tutorial
ABSTRACT
Social media are increasingly leveraged by researchers to engage in public debates and to rapidly disseminate research results to healthcare providers, healthcare users, policymakers, educators, and the general public. This tutorial article contributes to growing literature on the use of social media for digital knowledge mobilization, drawing particular attention to TikTok and its unique potential for collaborative knowledge mobilization with underserved communities who experience barriers to healthcare and health inequities. Setting the TikTok platform apart from other social media are unique audio-visual video editing tools, together with an impactful algorithm, making possible knowledge dissemination and exchange with large global audiences. As an exemplar, we discuss digital knowledge mobilization with transgender and nonbinary populations, a population who experience barriers to healthcare and who are engaged in significant peer-to-peer health information sharing online. To demonstrate, analytics data from 13 selected TikTok videos on the topic of gender-affirming medicine (e.g., cross-sex hormones and surgeries) research are presented to illustrate how knowledge is disseminated within the trans community via TikTok. Considerations for researchers planning to use TikTok for digital knowledge mobilization and other related community engagement are also discussed. These include: the limitations of TikTok analytics data for measuring knowledge mobilization; trans population-specific concerns related to community safety on social media; barriers to internet access; the spread of disinformation; and commercialization and intellectual property issues. This article concludes that TikTok is an innovative social media platform presenting possibilities to achieve transformative, community-engaged knowledge mobilization between researchers, underserved healthcare users, and their healthcare providers—all of which are necessary to achieve better healthcare and population health outcomes.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.