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It’s not just the FEV1 that matters, but the personal goals we reach along the way: Viewpoint article.
Martinus C. Oppelaar;
Lara S. van den Wijngaart;
Peter J.F.M. Merkus;
Ellen A. Croonen;
Cindy A.C. Hugen;
Marianne L. Brouwer;
Annemie L.M. Boehmer;
Jolt Roukema
ABSTRACT
Background:
The covid-19 pandemic has boosted the use of in FEV1 telemonitoring in pediatric asthma, while a consensus on its most efficient and effective implementation is still lacking. To find answers, it is important to study how such an intervention is perceived, experienced and used both by patients and healthcare professionals (HCP).
Objective:
To provide perspectives on how FEV1 home monitoring should be used in pediatric asthma.
Methods:
This is a qualitative multicenter prospective observational study which included asthma patients aged 6-16 years old and HCP. Primary outcomes were survey results of two surveys which were sent to all participants, one at study start and one after 3 to 4 months. Secondary outcomes consisted of FEV1 usage during four months after receiving the FEV1 device.
Results:
39 participants (26 patients and 13 HCP) were included in this study. Survey response rates were 97% at start and 87% at study end. Both patients and HCP were receptive to online FEV1 home monitoring and found it contributive to asthma control, self-management and disease perception. The main concerns were about reliability of the FEV1 device and validity of home-performed FEV1 maneuvers. 69% of included patients used their device regularly during the study period with a large inter-individual variation.
Conclusions:
Patients and HCP are receptive towards online FEV1 home monitoring. Frequency of measurements varied largely among individuals, yet perceived benefits remained similar. This emphasizes that online FEV1 home monitoring strategies should be used as a means to reach individual goals, rather than being a goal on its own.
Citation
Please cite as:
Oppelaar MC, van den Wijngaart LS, Merkus PJ, Croonen EA, Hugen CA, Brouwer ML, Boehmer AL, Roukema J
It Is Not Just the FEV1 That Matters, but the Personal Goals We Reach Along the Way: Qualitative, Multicenter, Prospective, Observational Study