Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Mar 11, 2021
Date Accepted: Jul 5, 2021
Trends and Patterns in the Public Awareness of Palliative Care, Euthanasia and End-of-Life Decisions in Three Central European Countries: Using Big Data Analysis from Google
ABSTRACT
Background:
End-of-life decisions, specifically the provision of euthanasia and assisted suicide services, challenge traditional medical and ethical principles. Austria and Germany have decided to liberalize their laws restricting assisted suicide, thus reigniting the debate about a meaningful framework in which the practice should be embedded. Evidence of the relevance of assisted suicide and euthanasia for the general population in Germany and Austria is limited.
Objective:
This study examined whether the public awareness documented by search activities in the most frequently used search engine, Google, on the topics of “palliative care,” “euthanasia,” and “advance health care directives” changed with the implementation of palliative care services and new governmental regulations concerning end-of-life decisions.
Methods:
We searched for policies, laws, and regulations promulgated or amended in Austria, Germany, and Switzerland between 2004 and 2020 and extracted data on the search volume for each search term topic from Google Trends as a surrogate of public awareness and interest. The annual averages were analysed using the Joinpoint Regression Program.
Results:
Important policy changes yielded significant changes in the search trends for the investigated topics. The enactment of laws regulating advance health care directives led to a significant drop in the volume of searches for the topic of euthanasia in all three countries (Austria: −24.48%; P=.02; Germany: −14.95%; P<.001; Switzerland: −11.75%; P=0.049). Interest in palliative care increased with the availability of care services and the implementation of laws and policies to promote palliative care (Austria: 22.69%; P=.01; Germany: 14.39; P<.001; Switzerland: 17.59% P<.001). The search trends for advance health care directives showed mixed results. While the interest remained steady in Austria within the study period, it increased by 3.66% (P<.001) in Switzerland and decreased by 2.85% (P<.001) in Germany.
Conclusions:
Our results demonstrate that legal measures securing patients’ autonomy at the end of life lower the search activities for topics related to euthanasia and assisted suicide. Palliative care may be a meaningful way to raise awareness of the different options for end-of-life care and to guide patients in their decision-making process regarding the same.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.