Accepted for/Published in: JMIR Research Protocols
Date Submitted: Feb 23, 2021
Date Accepted: Jun 4, 2021
Date Submitted to PubMed: Aug 3, 2021
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
The COVID-19 Citizen Science Study: Protocol for a Worldwide, Longitudinal, Digital Health Cohort Study
ABSTRACT
The COVID-19 pandemic has catalyzed a global public response and innovation in clinical study methods. Here, we describe the COVID-19 Citizen Science study, a world-wide, longitudinal cohort study launched on March 26, 2020 on the Eureka Research Platform to generate knowledge to help the public health response to COVID-19. To date, the study has enrolled over 50,000 participants. This study illustrates important advances in digital clinical studies, including entirely digital study participation, targeted recruitment strategies, electronic consent, recurrent and time-updated assessments, integration with smartphone-based measurements, analytics for recruitment and engagement, connection with partner studies, novel engagement strategies such as participant-proposed questions, and feedback of real-time results to participants. Continued innovation in digital clinical study methods represents the future of clinical research.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.