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Accepted for/Published in: JMIR Formative Research

Date Submitted: Dec 8, 2020
Date Accepted: Feb 4, 2021

The final, peer-reviewed published version of this preprint can be found here:

Designing an mHealth Intervention for People With Visible Differences Based on Acceptance and Commitment Therapy: Participatory Study Gaining Stakeholders’ Input

Zucchelli F, Donnelly O, Rush E, Smith H, Williamson H, The VTCT Foundation Research Team At The Centre For Appearance Research

Designing an mHealth Intervention for People With Visible Differences Based on Acceptance and Commitment Therapy: Participatory Study Gaining Stakeholders’ Input

JMIR Form Res 2021;5(3):e26355

DOI: 10.2196/26355

PMID: 33759791

PMCID: 8075076

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Designing an mHealth intervention based on Acceptance and Commitment Therapy for people with visible differences: A participatory study involving stakeholders with clinical and lived experience

  • Fabio Zucchelli; 
  • Olivia Donnelly; 
  • Emma Rush; 
  • Harriet Smith; 
  • Heidi Williamson; 
  • The VTCT Foundation Research Team At The Centre For Appearance Research

ABSTRACT

Background:

Given their growing popularity, mobile health apps (mHealth) may offer a viable method of delivering psychological intervention for people who have an atypical appearance (visible difference) and struggle with appearance-related distress. Acceptance and Commitment Therapy (ACT), a third-wave cognitive-behavioural approach, has been used effectively in mHealth and is being increasingly applied clinically to common psychosocial difficulties associated with visible difference. We planned to design an ACT-based mHealth intervention for this group.

Objective:

The authors sought to gain key stakeholder input from user representatives and psychological clinicians to optimise the intervention’s design for future development and uptake.

Methods:

Within a participatory design framework, we used a mix of qualitative methods including usability sessions and a focus group in a face-to-face workshop, and interviews and textual feedback collected remotely, all of which the authors analysed using template analysis.

Results:

The combined findings suggest strengths and challenges of mHealth as an intervention platform for the population, including considerations regarding safeguarding and users’ ongoing engagement. Participants expressed design preferences towards relatable human content, interactive and actionable features, flexibility of use and accessible, engaging content.

Conclusions:

Findings offer valuable design directions for ACT It Out and other related interventions, emphasising the need to carefully guide users through the intervention while acknowledging the limited time and space afforded by mHealth as a platform.


 Citation

Please cite as:

Zucchelli F, Donnelly O, Rush E, Smith H, Williamson H, The VTCT Foundation Research Team At The Centre For Appearance Research

Designing an mHealth Intervention for People With Visible Differences Based on Acceptance and Commitment Therapy: Participatory Study Gaining Stakeholders’ Input

JMIR Form Res 2021;5(3):e26355

DOI: 10.2196/26355

PMID: 33759791

PMCID: 8075076

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