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Accepted for/Published in: JMIR Formative Research

Date Submitted: Oct 19, 2020
Date Accepted: Jan 17, 2021

The final, peer-reviewed published version of this preprint can be found here:

Internet Access and Usage Among Stroke Survivors and Their Informal Caregivers: Cross-sectional Study

Naqvi IA, Montiel TC, Bittar Y, Hunter N, Okpala M, Johnson C, Weiner M, Savitz S, Sharrief A, Beauchamp JES

Internet Access and Usage Among Stroke Survivors and Their Informal Caregivers: Cross-sectional Study

JMIR Form Res 2021;5(3):e25123

DOI: 10.2196/25123

PMID: 33683206

PMCID: 7985796

Internet Access and Usage among Stroke Survivors and their Informal Caregivers

  • Imama Ali Naqvi; 
  • Tahani Casameni Montiel; 
  • Yazan Bittar; 
  • Norma Hunter; 
  • Munachi Okpala; 
  • Constance Johnson; 
  • Mark Weiner; 
  • Sean Savitz; 
  • Anjail Sharrief; 
  • Jennifer Elizabeth Sanner Beauchamp

ABSTRACT

Background:

Web-based interventions have shown promise for chronic disease management, but have not been widely applied to stroke populations. Barriers exist that may inhibit the adoption of web-based interventions in stroke survivors and necessitate informal caregiver involvement. However, limited information is known about internet accessibility and usability in stroke survivors and their caregivers. The purpose was to investigate internet access and usage in stroke survivors and their caregivers.

Objective:

To investigate internet access and usage in a cohort of stroke survivors and caregivers of stroke survivors.

Methods:

A cross-sectional survey of 375 participants (stroke survivors, 248; caregivers, 127). Descriptive statistics were generated through cross-tabulations. Comparisons with categorical data were conducted with the chi-square test, while Mann-Whitney U test was used for comparisons involving ordinal variables.

Results:

Eighty-five percent of the participants reported internet access. Caregivers were more likely than stroke survivors to access the internet X2 (1, N = 375) = 18.5, p < .001 and use text messaging X2 (1, N = 321) = 14.74, p < .001. Stroke survivors and caregivers with internet access were younger than stroke survivors and caregivers without internet access. The highest number of participants who reported internet access were Non-Hispanic Whites. Smart phones were the most common device used to access the Internet. Email was the most common type of internet usage reported. The number of stroke survivors with internet access was higher in survivors more than12 months compared to survivors less than 3 months (p < .001) after the stroke event. The number of hours per week spent using the Internet was higher for caregivers than stroke survivors (p < .001).

Conclusions:

Future feasibility and acceptability studies should consider the role of the informal caregiver, participant age, race and ethnicity, the use of smartphone applications, email and text correspondence, and the amount of time since the stroke event in the design and implementation of web-based interventions for stroke populations.


 Citation

Please cite as:

Naqvi IA, Montiel TC, Bittar Y, Hunter N, Okpala M, Johnson C, Weiner M, Savitz S, Sharrief A, Beauchamp JES

Internet Access and Usage Among Stroke Survivors and Their Informal Caregivers: Cross-sectional Study

JMIR Form Res 2021;5(3):e25123

DOI: 10.2196/25123

PMID: 33683206

PMCID: 7985796

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