Previously submitted to: JMIR Aging (no longer under consideration since Feb 26, 2021)
Date Submitted: Sep 23, 2020
Open Peer Review Period: Sep 23, 2020 - Nov 18, 2020
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Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review
ABSTRACT
Background:
Over one million Canadians are affected directly or indirectly by dementia. Informal caregivers (CGs) of people with dementia (PwD) provide the majority of health-based care to PwD. Providing this care requires knowledge and access to resources, which CGs often do not receive. CGs are looking online for dementia education and support.
Objective:
The primary objective was to evaluate the impact of online educational tools on informal CG self-efficacy. Secondary outcomes of interest are CG quality of life, CG burden/distress, CG stress, CG depression, CG anxiety, and identifying effective processes for online educational tool development.
Methods:
The search protocol, inclusion and exclusion criteria, and methods of analysis were all specified a priori. A systematic search of CINAHL, MEDLINE, EMBASE, and PubMed was performed to March 2018. The literature was periodically surveyed post-initial search to account for newly published articles. 32 articles were included.
Results:
Despite some studies reporting mixed perceived value for CG, multiple studies reported encouraging results. There is some evidence in the literature that online interventions improve CG self-efficacy, depression, dementia knowledge, and quality of life; and decrease caregiver burden.
Conclusions:
: Online educational tools appear to be effective at improving CG-related outcomes. Developers are encouraged to involve CGs and health care professionals at all stages of tool conceptualization and development; and evaluate the effectiveness of online tools with robust RCTs that focus on how increased knowledge modifies CG-related outcomes.
Citation
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