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Accepted for/Published in: JMIR Formative Research

Date Submitted: Aug 26, 2020
Date Accepted: May 19, 2021

The final, peer-reviewed published version of this preprint can be found here:

Designing User-Centered Mobile Health Initiatives to Promote Healthy Behaviors for Children With Disabilities: Development and Usability Study

Shikako-Thomas K, Mogo ER, Grand-Maison V, Simpson R, Pritchard-Wiart L, Majnemer A

Designing User-Centered Mobile Health Initiatives to Promote Healthy Behaviors for Children With Disabilities: Development and Usability Study

JMIR Form Res 2021;5(9):e23877

DOI: 10.2196/23877

PMID: 34528886

PMCID: 8485194

Designing user-centred mHealth initiatives to promote healthy behaviours for children with disabilities: A feasibility/pilot study of the Jooay App

  • Keiko Shikako-Thomas; 
  • Ebele RI Mogo; 
  • Valerie Grand-Maison; 
  • Robert Simpson; 
  • Lesley Pritchard-Wiart; 
  • Annette Majnemer

ABSTRACT

Background:

The gap between research and its practical application in community settings limits its impact on public health. Closing this gap has the potential to improve the well-being of underserved groups, such as children with disabilities. Mobile health holds promise in closing this gap by helping underserved populations build community and improve their access to community resources and supports that can lead to improved health behaviours.

Objective:

In this feasibility pilot, we describe the development of the mobile app, Jooay. Jooay was developed in partnership with stakeholders to facilitate access to leisure and physical activity community programs for children and youth with disabilities. We also reflect on the lessons learned throughout the implementation process that are relevant for improving health behaviours for children with disabilities.

Methods:

We used a participatory action research approach in the development of the app. We also administered a cross-sectional survey to current Jooay users and analysed various app usage indicators to explore use patterns and user feedback and preferences. Finally, we critically appraised the implementation process, using the best practices for implementation research by Peters et al. (2013).

Results:

Our analysis of usage data revealed that access to the Jooay app is concentrated in urban areas. Perceptions, attitudes, and information needs varied according to the type of user. Use of the mobile app changes over time, with usage decreasing after download, showing a need for sustained engagement of app users. Users found value in using the app to identify activities they would not otherwise know about. However, app use alone was not enough to improve participation. We also encountered challenges with survey recruitment and attrition, suggesting the need for more seamless and engaging means for data collection within this population.

Conclusions:

Using the information gained from this study, we intend to improve the next iteration of the Jooay app to sustain user engagement and behaviour change. We will also conduct a larger study assessing the relationship between urban design and access to inclusive and adaptive leisure programs. This study will inform the improvement of app listings and an understanding of the different user groups.


 Citation

Please cite as:

Shikako-Thomas K, Mogo ER, Grand-Maison V, Simpson R, Pritchard-Wiart L, Majnemer A

Designing User-Centered Mobile Health Initiatives to Promote Healthy Behaviors for Children With Disabilities: Development and Usability Study

JMIR Form Res 2021;5(9):e23877

DOI: 10.2196/23877

PMID: 34528886

PMCID: 8485194

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