Accepted for/Published in: JMIR mHealth and uHealth
Date Submitted: Jul 13, 2020
Date Accepted: Apr 24, 2021
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Self-management mobile apps for people with epilepsy: A systematic review
ABSTRACT
Background:
Patients with epilepsy (PWE) are motivated to manage and cope with their disorder by themselves, that is, self-management (SM). Mobile health applications (apps) have multiple features that show a huge potential to improve self-management of individuals with chronic disorders such as epilepsy.
Objective:
This study aims to review all available free apps related to the self-management of PWE and to determine the self-management domains included in these apps
Methods:
Systematic reviews were performed for all apps by searching in iOS and Android app databases using the keywords “epilepsy” and “seizure.”
Results:
We identified 22 epilepsy SM apps:6 were found in iOS, 7 in Android, and 9 in both.Of the 11 domains of self-management, seizure tracking and seizure response features were available in most Apps(N=22 and N=19respectively), followed by treatment management(N=17) and medication adherence(N=15).Three apps (Epilepsy Journal, Epilepsy Tool Kit and EpiDiary) were installed more than 10,000 times, with features focused specifically on a few domains (including treatment management, medication adherence, health-care communication, and seizure tracking). Two Apps had >6 SM domains (Young epilepsy and E-Epilepsy Inclusion) but both with lower installation rates (5000+ and 100+ respectively).
Conclusions:
There were mobile health applications to improve self-management in epilepsy in both iOS and Android platform, but the installation rate of most apps was low. The self-management features in various Apps were different and common features included seizure tracking and seizure response.
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