Accepted for/Published in: JMIR Research Protocols
Date Submitted: Jul 13, 2020
Date Accepted: Nov 10, 2020
Investigating the Needs and Requirements of Older People with Dementia or Parkinson disease, their Caregivers and Other Stakeholders in the Development of the Personalized Integrated Care Platform PROCare4Life: Protocol of a Mixed-Methods Study
ABSTRACT
Background:
Dementias including Alzheimer disease, and Parkinson disease profoundly impacts the quality of life of older populations and their families. PROCare4Life is a European project that recognizes the benefit of technology-based integrated care models in improving the care coordination and the quality of life of these target groups. It proposes an integrated, scalable and interactive care platform targeting older people suffering from neurodegenerative diseases, their caregivers, and socio-health professionals. PROCare4Life adopts a User-Centered Design approach from the early stage and throughout the platform development and implementation, where the platform is designed and adapted to the needs and requirements of all the involved users.
Objective:
This paper presents the study protocol that will be used to investigate the user’s needs and requirements regarding the design of the proposed PROCare4Life platform.
Methods:
A mixed qualitative and quantitative study design is utilized. Including interviews, workshops, and online surveys, involving approximately 200 participants: patients diagnosed with dementia /Alzheimer disease or Parkinson disease, caregivers and other stakeholders including socio-health professionals, recruited from five different European countries (Germany, Italy, Portugal, Romania and Spain).
Results:
The results of the study which took place in the period May-September 2020, will be used to shape the large-scale piloting phase of the PROCare4Life project.
Conclusions:
This paper charts the protocol for a user-centered design approach at the early stage of the project to shape and influence an integrated health solution suitable for its intended target group and purpose.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.