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Accepted for/Published in: JMIR Pediatrics and Parenting

Date Submitted: Jul 10, 2020
Date Accepted: Mar 7, 2021

The final, peer-reviewed published version of this preprint can be found here:

Social Media Terms and Conditions and Informed Consent From Children: Ethical Analysis

Schneble CO, Favaretto M, Elger BS, Shaw DM

Social Media Terms and Conditions and Informed Consent From Children: Ethical Analysis

JMIR Pediatr Parent 2021;4(2):e22281

DOI: 10.2196/22281

PMID: 33885366

PMCID: 8103294

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Social media terms and conditions and informed consent from children - an ethical analysis

  • Christophe Olivier Schneble; 
  • Maddalena Favaretto; 
  • Bernice Simonne Elger; 
  • David Martin Shaw

ABSTRACT

Terms and conditions define the relationship between social media companies and users when the latter employ one of their services. However, these legal agreements are long and written in complex language. It remains questionable whether users (and particularly younger users) understand the terms and conditions and are aware of the consequences of joining such a network. Informing users about the use of their data in way one can grasp the essential information is a key because today’s social media apps collect a wide range of data ranging from non-sensitive data to very sensitive health data (if data is interlinked). With children interacting form a young age with social media, companies are thus acquiring large amounts of data, resulting in a longitudinal data sets, researchers can only dream of. This paper offers an ethical analysis of the most common social media apps/services including how users are informed and give consent regarding topics like privacy and discusses how experiences form research ethics could serve as role model and lead to a trusted partnership between users and social media companies.


 Citation

Please cite as:

Schneble CO, Favaretto M, Elger BS, Shaw DM

Social Media Terms and Conditions and Informed Consent From Children: Ethical Analysis

JMIR Pediatr Parent 2021;4(2):e22281

DOI: 10.2196/22281

PMID: 33885366

PMCID: 8103294

Per the author's request the PDF is not available.