Accepted for/Published in: JMIR Mental Health
Date Submitted: Jun 15, 2020
Date Accepted: Sep 28, 2021
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Behavioral Health Professionals’ Perceptions on Patient-Controlled Granular Information Sharing: Mixed-Methodology Comparison Using Survey and Focus Group Interviews
ABSTRACT
Background:
Preliminary research demonstrates that health professionals have concerns and mixed opinions about how patients share personal health information for care, especially in the context of electronic consent. Little is known about how clinical professionals in behavioral health settings perceive the impact of patient-controlled granular information sharing (PC-GIS).
Objective:
This study aims to 1) specify health professionals’ concerns related to PC-GIS, 2) compare health professionals’ perceptions on PC-GIS based on role (prescriber and non-prescriber) and 3) compare health professionals’ perceptions on PC-GIS from the perspective of patient population: professionals caring for individuals with serious mental illness (SMI) and those caring for individuals with general mental health (GMH) disorders.
Methods:
Four focus groups at two integrated health care facilities (one SMI facility and one GMH facility). Twenty-eight participants were given access to outcomes of a previous patient study, where patients had control over medical record sharing. Participants were surveyed before and after focus groups. Thematic analysis of interviews paired with descriptive statistics and factor analysis of surveys were used.
Results:
After reviewing PC-GIS choices, participants had significant (P <.01, P <.05) concerns centered around patient safety (60.1%). Prescribers discussed professional considerations, such as necessity of health information, and significantly (eigenvalues above 1.00) influenced the conversation. Most prescribers (80.0%) had severe concerns over PC-GIS, compared with few (17.4%) non-prescribers. The GMH facility was dominant (64.7%) in discussions of professional risks/rights and had greater levels of concerns with multiple significant di
Conclusions:
Health professionals are concerned about negative impacts of PC-GIS on patient safety and quality of care. This study suggests that despite differing perceptions based on health professional role, information needs, and care focus, the patient-professional rapport is integral to optimal implementation of PC-GIS.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.