Accepted for/Published in: JMIR Formative Research
Date Submitted: Jul 20, 2020
Date Accepted: Dec 19, 2020
Perceptions of Digital Technology Experiences and Development among Family Caregivers and Technology Researchers: A Qualitative Study
ABSTRACT
Background:
Caregiving is highly stressful and associated with poor mental and physical health. Technologies, including mobile and e-health applications, have been developed to address caregiver needs. Yet, there remains a paucity of research that examines the technology perceptions of informal caregivers, especially from a sex, gender and diversity perspective.
Objective:
To address this gap and inform the development of future caregiving technologies, this study aimed to (1) examine how family caregivers perceive the use of technology in assisting with their caregiving routines, (2) explore the sex, gender and diversity influences on these perceptions and (3) understand how these perceptions and needs are reflected within the current technology development process.
Methods:
Semi-structured interviews were conducted with 16 informal caregivers of individuals with a range of chronic medical conditions and eight technology researchers involved in caregiving technology projects.
Results:
Three main themes with subthemes were developed: the first main theme is Caregivers see a need for technology in their lives and consists of three subthemes: Caregiving is a challenging endeavor, Technology is multi-faceted, and Caregiver preferences mediate technology use. The second main theme is Relationships play a vital role in mediating technology uptake and comprises two subthemes: The caregiver-care recipient dynamic shapes technology perceptions, and Caregivers rely on external networks for technology information. Finally, the third main theme is Barriers are present in the use and adoption of technology and comprises two subthemes: Technology may not be compatible with personal values and abilities, and Technology that is not tailored towards caregivers lacks adoption.
Conclusions:
The findings bring to light the multi-faceted role technology can play in aiding caregiving, while at the same time drawing attention to the pitfalls and drawbacks of these technologies perceived by caregivers. Bringing in technology researchers to the study provides a more holistic understanding of technology in caregiving from its initial development to eventual uptake by caregivers.
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© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.