Accepted for/Published in: JMIR Research Protocols
Date Submitted: Apr 9, 2020
Date Accepted: Dec 8, 2020
Technology to Improve Autonomy and Inform Housing Decisions for Older Adults with Memory Problems Who Live at Home: Protocol for a Multi-Pronged Mixed Methods Study in Canada, Sweden and the Netherlands
ABSTRACT
Background:
The outdoor mobility patterns of older adults with memory problems have the potential to improve shared decision making (SDM) about housing options.
Objective:
We aim to: 1) assess autonomy and mobility patterns outside the home of older adults with memory problems, 2) co-design an e-decision support intervention (e-DSI) that integrates these patterns, 3) assess real-life experiences with this e-DSI and 4) inform future SDM processes about housing options.
Methods:
Informed by the Good Reporting of a Mixed Methods Study (GRAMMS) reporting guidelines, we will conduct a three-year multipronged mixed-methods study in Canada, Sweden and the Netherlands. For phase one, we will recruit a convenient sample of 20 older adults with memory problems from clinical and community settings in each country for a total of 60 participants. We will ask participants to record their mobility patterns outside their home for 14 days using a Global Positioning System (GPS) and a travel diary plus we will conduct a walking interview and a final debrief interview after 14 days. For phase two, using results from the first phase, we will conduct one user-centred co-design process per country with older adults, caregivers, and IT representatives informed by the Double Diamond method. We will ask participants how mobility patterns outside the home may foster SDM about housing options and how this type of information can be added to an existing e-decision support platform. For the third phase, using online web-based survey methods, we will invite 210 older adults and/or their caregivers (split equally across the three countries) to use the e-decision support platform and provide feedback on its strengths and limitations. For the final stage of this project, we will triangulate and compare data from all phases and countries to inform a stakeholder meeting that will prioritise a future action plan.
Results:
The study opened for recruitment in Netherlands in November 2018 and in Canada and Sweden, in December 2019. Data collection will be completed by April 2021.
Conclusions:
This project will inform on how the outdoor mobility patterns of older adults with memory problems, in three countries, can foster SDM about housing options. Clinical Trial: ClinicalTrial.gov 118792 (NCT04267484)
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