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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Mar 17, 2020
Date Accepted: Nov 11, 2020

The final, peer-reviewed published version of this preprint can be found here:

Using Social Media Data to Understand Consumers' Information Needs and Emotions Regarding Cancer: Ontology-Based Data Analysis Study

Lee J, Park HA, Park S, Song TM

Using Social Media Data to Understand Consumers' Information Needs and Emotions Regarding Cancer: Ontology-Based Data Analysis Study

J Med Internet Res 2020;22(12):e18767

DOI: 10.2196/18767

PMID: 33284127

PMCID: 7752532

Ontology-based analysis of social media data to understand consumers' information needs and emotions regarding cancer

  • Jooyun Lee; 
  • Hyeoun-Ae Park; 
  • Seulki Park; 
  • Tae-Min Song

ABSTRACT

Background:

Posts on social media are very useful for identifying health information needs in the management of disease and emotional status related to disease. An ontology is needed for semantic analysis of social media data.

Objective:

This study was performed to develop a cancer ontology with consumer terms and to analyze social media data to identify health information needs and emotions related to cancer.

Methods:

We developed a cancer ontology based on Noy and McGuinness’s Ontology development 101. The social media data on cancer collected using a crawler from online communities and blogs between January 1, 2014 and June 30, 2017 in South Korea. The relative frequency of post containing ontology concepts were counted and compared by cancer type.

Results:

The developed ontology has nine superclasses, 213 class concepts, and 4,061 synonyms. Ontology-driven natural language processing (NLP) was performed on the text in 754,744 cancer-related posts collected from blogs and online communities in Korea. Colon, breast, stomach, cervix, lung, liver, leukemia, brain, pancreas, and prostate cancer were appeared most commonly in these posts. At the superclass level, risk factor was the most frequently posted, followed by emotions, symptoms, treatments, and dealing with cancer.

Conclusions:

Information needs and emotions differed according to the cancer type. The observations of the present study could be used to provide tailor information to consumers according to the cancer type and care process of cancer. Attention should be paid to cancer information not only for patients, but also for their families and the public who are interested in cancer.


 Citation

Please cite as:

Lee J, Park HA, Park S, Song TM

Using Social Media Data to Understand Consumers' Information Needs and Emotions Regarding Cancer: Ontology-Based Data Analysis Study

J Med Internet Res 2020;22(12):e18767

DOI: 10.2196/18767

PMID: 33284127

PMCID: 7752532

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