Accepted for/Published in: JMIR Research Protocols
Date Submitted: Feb 19, 2020
Date Accepted: Jun 2, 2020
Date Submitted to PubMed: Jun 4, 2020
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Individualised apartment accommodation for people with intellectual disability -A qualitative sudy Protocol to examine wellbeing and support outcomes linking housing and health.
ABSTRACT
Background:
Understanding the outcomes associated with both receiving and providing support to people with intellectual disability in specific settings can facilitate the alignment of health providers, community care providers, architects and urban planners to strengthen levels of autonomy and community participation of people with intellectual disability living in the community.
Objective:
This study aims to understand the impact of providing high support for people with intellectual disability in a high-density apartment from the perspectives of those who live and receive support there, their families and guardians, and the support staff who work within this model.
Methods:
Grounded theory will be applied to semi-structured interview data from a sample of approximately 60 participants (20 people with intellectual disability, 20 support staff and 20 family members), and paired with pre- and post-occupancy evaluation data from both apartments and group homes. Eligible participants are associated with a high-density development in Sydney, Australia where high support is provided in some apartments by a disability organisation known in this protocol as the 'Provider'. Interview data will be analysed and paired with pre/post-occupancy evaluations of the new accommodation design and location and the participants’ previous group-home location. The collected data will be coded by applying both open and axial coding.
Results:
The study will capture personal experiences of people with intellectual disability receiving high levels of support in an apartment compared to their experiences in a group home. It will also capture the experiences of support staff working in the new setting, and how this differs from providing support in a group home. The collected data will be triangulated with data from family and guardians’ perspectives. The research recognises the role of environmental factors, including urban planning and housing design, in influencing the wellbeing, participation and quality of life of people with intellectual disability. Teh accommodation design and setting also influences the type and quality of support provision provided to people with intellectual disability living in community. The study will provide new insights into emerging health and wellbeing outcomes associated with community living for people with intellectual disability. It will also inform policies and practice of for innovative, sustainable and person-led models of high (24hr) support provision in the community.
Conclusions:
C Clinical Trial: c
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