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All our data will be health data one day: the need for universal data protection and comprehensive consent
Christophe Olivier Schneble;
Bernice Simone Elger;
David Martin Shaw
ABSTRACT
The tremendous growth in the types of data that are collected and their interlinkage allow more and more predictions of individuals' behavior, health status and diseases. Legislation in many countries treats health-related data a special sensitive kind of data. Today’s massive linkage of data, however, could transform 'non-health' data into sensitive health data. In this paper we argue that the notion of health data should be broadened and a take into account also past and future health data and indirect, inferred and invisible non-health data. We then lay out the ethical and legal implications of our model.
Citation
Please cite as:
Schneble CO, Elger BS, Shaw DM
All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent