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Accepted for/Published in: JMIR Research Protocols

Date Submitted: Oct 15, 2019
Date Accepted: Apr 21, 2021

The final, peer-reviewed published version of this preprint can be found here:

Effectiveness of a Two-Tier Family-Oriented Intervention in Enhancing the Family Functioning and Care Capacity of the Family Caregivers of Stroke Survivors: Protocol for a Randomized Controlled Trial

Lou VW, Tang JYM, Lau GKK, Lum TYS, Fong K, Ko RWT, Cheng CYM, Fu JY, Chow E, Chu A, Hui E, Ng W, Chan F, Luk CC, Kwok TK

Effectiveness of a Two-Tier Family-Oriented Intervention in Enhancing the Family Functioning and Care Capacity of the Family Caregivers of Stroke Survivors: Protocol for a Randomized Controlled Trial

JMIR Res Protoc 2021;10(5):e16703

DOI: 10.2196/16703

PMID: 34047707

PMCID: 8196356

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Effectiveness of a Two-Tier Family-Oriented Intervention in Enhancing Family Functioning and Care Capacity of Family Caregivers of Stoke Survivors: Protocol for a Randomized Controlled Trial

  • Vivian Weiqun Lou; 
  • Jennifer Yee Man Tang; 
  • Gary Kui Kai Lau; 
  • Terry Yat Sang Lum; 
  • Kenneth Fong; 
  • Rachel Wai Tung Ko; 
  • Clio Yuen Man Cheng; 
  • Joyce Yinqi Fu; 
  • Eddie Chow; 
  • Angus Chu; 
  • Elsie Hui; 
  • Winnie Ng; 
  • Felix Chan; 
  • C. C. Luk; 
  • T. K. Kwok

ABSTRACT

Background:

Stroke brings about abrupt and immense changes to stroke families’ dynamics and responsibilities. Adaptation to new family roles is challenging, as support for caregivers of stoke survivors is minimal, presenting a major obstacle towards restoring family functioning and maximizing care capacity.

Objective:

This study aims to implement and examine the effectiveness of a two-tier family- oriented intervention involving care managers and volunteers for enhancing family functioning and care capacity of family caregivers of stroke survivors.

Methods:

This is a multicenter, two-armed, randomized, controlled study (intervention group, n=150; control group, n=150). Following case referral from hospital, family caregivers of stroke survivors and stroke survivors provide informed consent and undergo initial screening. Caregivers report significant caregiver burden, and/or depressive mood, and/or family dysfunctioning are randomly assigned to undergo two-tier family-oriented intervention (intervention group) or psychoeducation (control group). The primary outcome is the change in i) family role performance, ii) family caregiver conflict, iii) care management strategies, and iv) general family functioning from baseline to 2 weeks and 2 months after completion of intervention.

Results:

This study began in January 2017 and is being conducted at three participating facilities in Hong Kong.

Conclusions:

This study will examine the effectiveness of a two-tier family- oriented intervention in enhancing family functioning and care capacity of family caregivers of stroke survivors. Through this study, we expect that this intervention can fill the service gap in the current stroke care system and serves as an important basis on which future evidence-based programs supporting family caregivers of stroke survivors could develop. Clinical Trial: ClinicalTrials.gov NCT03034330; https://ichgcp.net/clinical-trials-registry/NCT03034330


 Citation

Please cite as:

Lou VW, Tang JYM, Lau GKK, Lum TYS, Fong K, Ko RWT, Cheng CYM, Fu JY, Chow E, Chu A, Hui E, Ng W, Chan F, Luk CC, Kwok TK

Effectiveness of a Two-Tier Family-Oriented Intervention in Enhancing the Family Functioning and Care Capacity of the Family Caregivers of Stroke Survivors: Protocol for a Randomized Controlled Trial

JMIR Res Protoc 2021;10(5):e16703

DOI: 10.2196/16703

PMID: 34047707

PMCID: 8196356

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