Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Research Protocols

Date Submitted: Oct 4, 2019
Date Accepted: Mar 10, 2020

The final, peer-reviewed published version of this preprint can be found here:

Person and Family Centeredness in Ethiopian Cancer Care: Proposal for a Project for Improving Communication, Ethics, Decision Making, and Health

Berbyuk Lindström N, Abraha A, Bekele A, Munthe C, Andersson R, Girma Kebede B, Linderholm B, Tigeneh W

Person and Family Centeredness in Ethiopian Cancer Care: Proposal for a Project for Improving Communication, Ethics, Decision Making, and Health

JMIR Res Protoc 2020;9(5):e16493

DOI: 10.2196/16493

PMID: 32427112

PMCID: 7267985

Person- and Family-Centeredness in Ethiopian Cancer Care: Improving Communication, Ethics, Decision Making and Health

  • Nataliya Berbyuk Lindström; 
  • Aynalem Abraha; 
  • Abebe Bekele; 
  • Christian Munthe; 
  • Rune Andersson; 
  • Bethlehem Girma Kebede; 
  • Barbro Linderholm; 
  • Wondemagegnhu Tigeneh

ABSTRACT

Background:

Cancer is a major burden in Ethiopia, and Tikur Anbessa hospital, Addis Ababa, is its sole governmental unit for radiation treatment. With a handful of oncologists, lack of resources and a huge patient influx, the work is challenging, especially achieving effective and ethical patient consultation. Patients, usually accompanied by family, wait for long times and often depart without treatment. Handling consultations well is essential in order to help them as well as possible within such limitations.

Objective:

This project develops and consolidates a collaboration to better understand and mitigate the communicative challenges in Ethiopian cancer care, with focus on the handling and sharing of decision-making, and ethical tensions between patients, staff and family.

Methods:

In bilateral joint workshops, we will analyze multiple existing data, using theoretical models from linguistics, health communication and healthcare ethics. Completions to the existing data will be made.

Results:

We will develop clinical and methodological solutions to prepare expanded data collection, joint publications, application for joint projects and educational interventions. Though the needs of Ethiopia are prioritised, the project contributes to understanding of increasing challenges in Western health systems, where focus on family and patient participation is increasing, not least to a growing population of immigrants from Africa and the Middle East.

Conclusions:

Collaboration between researchers from linguistics, communication, philosophy and medicine contributes to development of person centered care.


 Citation

Please cite as:

Berbyuk Lindström N, Abraha A, Bekele A, Munthe C, Andersson R, Girma Kebede B, Linderholm B, Tigeneh W

Person and Family Centeredness in Ethiopian Cancer Care: Proposal for a Project for Improving Communication, Ethics, Decision Making, and Health

JMIR Res Protoc 2020;9(5):e16493

DOI: 10.2196/16493

PMID: 32427112

PMCID: 7267985

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.