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Accepted for/Published in: JMIR Human Factors

Date Submitted: Sep 17, 2019
Date Accepted: Feb 3, 2020

The final, peer-reviewed published version of this preprint can be found here:

Recommendations for Developing Support Tools With People Suffering From Chronic Obstructive Pulmonary Disease: Co-Design and Pilot Testing of a Mobile Health Prototype

Davies A, Mueller J, Hennings J, Caress AL, Jay C

Recommendations for Developing Support Tools With People Suffering From Chronic Obstructive Pulmonary Disease: Co-Design and Pilot Testing of a Mobile Health Prototype

JMIR Hum Factors 2020;7(2):e16289

DOI: 10.2196/16289

PMID: 32410730

PMCID: 7260664

Recommendations for Developing Support Tools with People Suffering from COPD: Co-design and pilot testing of an mHealth prototype

  • Alan Davies; 
  • Julia Mueller; 
  • Jean Hennings; 
  • Ann-Louise Caress; 
  • Caroline Jay

ABSTRACT

Background:

Gaps exist between developers, commissioners and end users in terms of the perceived desirability of different features and functionality for mobile apps.

Objective:

We present lessons learned and recommendations from working on a large project with various stakeholders to develop a mobile app for chronic obstructive pulmonary disease (COPD) patients.

Methods:

We adopted a user-centred, participatory approach to app development. Following a series of focus groups and interviews to capture requirements, we developed a prototype app, designed to enable daily symptom recording (experience sampling). The prototype was tested in a usability study applying the Think Aloud protocol on people with COPD. It was then released via the Android app store and experience sampling data and event data were captured to gather further usability data.

Results:

Five people with COPD took part in the pilot study. Identified themes include familiarity with technology, appropriate levels for feeding back information, and usability issues such as manual dexterity. Thirty-seven participants used the app over a four-month period (median age 47 years). The symptoms most correlated to perceived wellbeing were ‘tiredness’ (r =.61, P < .001) and ‘breathlessness’ (r =.59, P < .001).

Conclusions:

Design implications for COPD apps include the need for clearly labelled features (rather than relying on colours/symbols which require experience using smartphones), providing weather information, and using the same terminology as healthcare professionals (rather than simply lay terms). Target users, researchers and developers should be involved at every stage of app development, using an iterative approach to build a prototype app, which should then be tested in controlled settings as well as ‘in the wild’ (i.e. when deployed and used in real World settings) over longer time periods.


 Citation

Please cite as:

Davies A, Mueller J, Hennings J, Caress AL, Jay C

Recommendations for Developing Support Tools With People Suffering From Chronic Obstructive Pulmonary Disease: Co-Design and Pilot Testing of a Mobile Health Prototype

JMIR Hum Factors 2020;7(2):e16289

DOI: 10.2196/16289

PMID: 32410730

PMCID: 7260664

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