Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Aug 16, 2019
Date Accepted: Feb 7, 2020
The Development of a Web-based Patient-centered Intervention for Patients with Chronic Myeloid Leukemia: CMyLife.
ABSTRACT
Background:
With a global rise in chronic conditions health care is transforming and patient empowerment is emphasized, in order to improve treatment outcomes and reduce healthcare costs. Patient-centered innovations are needed and can be developed using design thinking, a valued methodology in IT and business, though little used in healthcare.
Objective:
The aim of this article was to develop a patient-centered innovation using the design thinking methodology. We focused on patients with chronic myeloid leukemia (CML), a chronic disease with a generally good long-term prognosis due to the advent of tyrosine kinase inhibitors. Adherence by both patients and physicians is suboptimal, unnecessarily jeopardizing treatment outcomes.
Methods:
The five phases of design thinking (empathize, define, ideate, prototype and test) were went through and all started with the patient. Stakeholders and end-users were identified and interviewed and observations in the care system were made. Using tools in human-centered design, problems were defined an various solution prototypes were generated. These were evaluated by patients and stake-holders and then further refined.
Results:
Patients desired: 1. insights in their own disease and 2. insights in experienced symptoms, both in terms of knowledge and comprehension, 3. improvement of logistics of care delivery. A web-based platform was developed and ran as a pilot: CMyLife. It has multiple features, all parts of the bigger solution, including: a website with reliable information and forum, guideline app, personal medical record with logs of symptoms and lab results (including molecular marker and linked to the guideline app), screen-to-screen consulting, delivery of medication and collecting blood samples at home.
Conclusions:
Design thinking resulted in the multidisciplinary development of the patient-centered innovation CMyLife. Possibly it could increase empowerment, both patient and physician adherence, quality of life and result in a digital centralization of care. Whether CMyLife achieves these goals needs to be evaluated in future studies. Clinical Trial: N/A
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