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Accepted for/Published in: JMIR Pediatrics and Parenting

Date Submitted: Aug 11, 2019
Date Accepted: Oct 3, 2020

The final, peer-reviewed published version of this preprint can be found here:

Usability of eHealth and Mobile Health Interventions by Young People Living With Juvenile Idiopathic Arthritis: Systematic Review

Butler S, Sculley D, Santos DS, Fellas A, Girones XG, Singh-Grewal D, Coda A

Usability of eHealth and Mobile Health Interventions by Young People Living With Juvenile Idiopathic Arthritis: Systematic Review

JMIR Pediatr Parent 2020;3(2):e15833

DOI: 10.2196/15833

PMID: 33258786

PMCID: 7738264

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Usability of eHealth and mHealth interventions by children and adolescents living with Juvenile Idiopathic Arthritis (JIA): a systematic review

  • Sonia Butler; 
  • Dean Sculley; 
  • Derek Santos Santos; 
  • Antoni Fellas; 
  • Xavier Girones Girones; 
  • Davinder Singh-Grewal; 
  • Andrea Coda

ABSTRACT

Background:

Considering the changing landscape of internet usage and rising ownership of SMART technology by young people new ways could be considered to improve the current model of JIA management.

Objective:

The aim of this systematic review is to evaluate the usability of eHealth and mHealth interventions currently available for children and adolescents living with JIA and identify potential limitations.

Methods:

The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to oversee this review. Fifteen databases were systematically searched identifying 249 potential studies. Two authors independently screened then scored their methodological quality using Down and Black’s (modified) checklist. Data Synthesis: A narrative descriptive methodology was used to quantify the data due to heterogeneity across the studies.

Results:

A total of ten studies were included in this review reporting varying stages of the eHealth and mHealth interventions life cycle. Devices used included a computer, laptop, hand held personal digital assistant (PDA) and Apple iPod touchTM. Usability of the interventions were promoted through training and ongoing technical support. Adherence by persuasive influences, flexible reminder times, and flexible program schedules to cater for JIA and non-JIA illness or other activities commonly seen in childhood.

Conclusions:

Most children, adolescents and their families liked and were satisfied with the interventions. Although the results of this review need to be considered cautiously due to heterogeneity, low sample size and lack of rigorous testing. Further research is needed to consider gender differences, associated costs of the intervention and effectiveness to better support children and adolescents living with JIA. Clinical Trial: PROSPERO (ID=CRD42018108985)


 Citation

Please cite as:

Butler S, Sculley D, Santos DS, Fellas A, Girones XG, Singh-Grewal D, Coda A

Usability of eHealth and Mobile Health Interventions by Young People Living With Juvenile Idiopathic Arthritis: Systematic Review

JMIR Pediatr Parent 2020;3(2):e15833

DOI: 10.2196/15833

PMID: 33258786

PMCID: 7738264

Per the author's request the PDF is not available.