Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Aug 7, 2019
Date Accepted: Oct 1, 2019
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Promotoras de Donación: Development of a Culturally Targeted eLearning Module on Deceased Organ Donation
ABSTRACT
Background:
As an overrepresented population on the transplant waitlist, stagnated rates of organ donation registration among Latinxs must be redressed. Promotoras (community health workers), who are effective at advocating and spearheading health promotion efforts in the Latinx community, show promise in their ability to educate about organ donation and donor registration.
Objective:
To develop an interactive, evidence-based program to educate promotoras about organ donation, the need for organ donors in the Latinx American community, and ways to register as deceased organ donors; and to train promotoras to lead discussions about organ donation and to promote the act of donor registration.
Methods:
In partnership with four promotoras organizations, the culturally targeted Promotoras de Donación eLearning module was developed based on input from twelve focus groups conducted with Latina women (n=61) and promotoras (n=37). Formative work, existing literature, the theory of Vested Interest, and the Organ Donation Model guided curriculum development. In partnership with The Gift of Life Institute and regional promotoras, the curriculum was designed, filmed, and developed in a visually appealing module interface. The module was beta-tested with promotoras prior to launch.
Results:
Promotoras de Donación, available in Spanish with English subtitling, lasts just over an hour. The module was comprised of six sections including various activities and videos, with the curriculum divided into engaging communication skills-based and didactic components. Pre and post-tests assessed the module's direct effects on promotoras’ organ donation knowledge and attitudes, and confidence promoting the act of donor registration.
Conclusions:
This novel, theoretically- and empirically-based intervention leveraged the existing network of promotoras to promote the act of donor registration. Future research should assess whether the module helps increase rates of donor registration within Latinx communities and reduce disparities in access to transplantation. Clinical Trial: ClinicalTrials.gov Identifier: NCT04007419
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