Accepted for/Published in: Journal of Participatory Medicine
Date Submitted: Jul 15, 2019
Date Accepted: Feb 28, 2020
Perceived Need for Psychosocial Support After Aortic Dissection: A cross sectional survey
ABSTRACT
Background:
Gold-standard management of Aortic Dissection (AOD), a life-threatening condition, includes multidisciplinary approaches. Yet, despite mental distress following AOD being common, evidence-based psychosocial-psychotherapeutic interventions for AOD-survivors are lacking.
Objective:
In line with patient involvement standards, our study estimated perceived psychosomatic needs of AOD-survivors, their relatives, and concerned professionals, informing development of such intervention.
Methods:
In a cross-sectional survey with 41 respondents (27 AOD-patients, 8 AOD-relatives, 6 health professionals), we estimated the perceived need for psychosocial-psychotherapeutic interventions after AOD, including their key topics, types, best timing, anticipated success, as well as intended and side effects.
Results:
The main desired intervention topics were 'changes in everyday life' (mentioned by 68.3%, 95% confidence interval (CI): 54.5–82.9), 'anxiety' (61%, 95%CI: 46.2–76.2), 'uncertainty' (58.5%, 95%CI: 42.9–73.2), 'tension/distress' (58.5%, 95%CI: 43.9–73.8), and 'trust in the body' (51.2%, 95%CI: 35.9–67.5). The most commonly mentioned intervention types were 'family/relative therapy' (51.2%, 95%CI: 35–65.9) and ‘anxiety treatment' (51.2%, 95%CI: 35–67.5). Recommended intervention timing peaked ‘during’ (63.4%, 95%CI: 47.6–77.5) followed by ‘shortly after’ (48.8%, 95%CI: 32.4–65) inpatient rehabilitation. More than 95% of respondents anticipated benefit from psychosocial-psychotherapeutic interventions following AOD, expecting probable improvement in on average 68.6% of AOD-survivors (95%CI: 61.4–76.2) and deterioration in 5.2% (95%CI: 2.9–7.9), with 5.7% (95%CI: 1.8–10.4) suffering from negative side effects of such interventions.
Conclusions:
Findings highlight substantial need and anticipated success of psychosocial-psychotherapeutic interventions in AOD-survivors, providing the basis for development and evaluation of respective therapies to become part of state-of-the-art AOD management.
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