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Accepted for/Published in: JMIR Diabetes

Date Submitted: Feb 15, 2019
Date Accepted: Jun 6, 2019

The final, peer-reviewed published version of this preprint can be found here:

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

Albanese-O'Neill A, Schatz DA, Thomas N, Bernhardt JM, Cook CL, Haller MJ, Bernier AV, Silverstein JH, Westen SC, Elder JH

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

JMIR Diabetes 2019;4(3):e13724

DOI: 10.2196/13724

PMID: 31389338

PMCID: 6701161

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

  • Anastasia Albanese-O'Neill; 
  • Desmond A Schatz; 
  • Nicole Thomas; 
  • Jay M Bernhardt; 
  • Christa L Cook; 
  • Michael J Haller; 
  • Angelina V Bernier; 
  • Janet H Silverstein; 
  • Sarah C Westen; 
  • Jennifer H Elder

Background:

Fathers make unique and central contributions to the health of their children. However, research in type 1 diabetes (T1D) education largely ignores the needs of fathers, including during the development of online and mobile educational materials.

Objective:

The purpose of this study was to solicit and incorporate input from fathers of children with T1D into the design, content, and infrastructure of a suite of online diabetes self-management education and support (DSMES) resources.

Methods:

The study took part in three phases: (1) exploratory research, (2) website and subdomain development, and (3) evaluation. Fathers of children with T1D (n=30) completed surveys and semistructured qualitative interviews. Thematic content analysis was used to identify fathers’ content and design preferences. An online DSMES website (T1DToolkit.org) and a separate mobile subdomain targeting fathers (Mobile Diabetes Advice for Dads, or mDAD) were developed. A prototype of the site for fathers was evaluated by 33 additional father participants. End user feedback was elicited via survey.

Results:

Participants in the exploratory phase were enthusiastic about the online diabetes resources. Preferences included high-quality design, availability via mobile phone and tablet, brief text content supplemented with multimedia and interactive features, reminders via text or email, endorsement by medical professionals, and links to scientific evidence. The mDAD subdomain received high usability and acceptability ratings, with 100% of participants very likely or likely to use the site again.

Conclusions:

The development of eHealth educational platforms for fathers of children with T1D remains an unmet need in optimizing diabetes management. This study incorporated fathers’ feedback into the development of a suite of online diabetes education resources. The findings will serve as the basis for future research to assess the clinical efficacy of the website, its subdomain targeting fathers, and additional subdomains targeting unique populations.


 Citation

Please cite as:

Albanese-O'Neill A, Schatz DA, Thomas N, Bernhardt JM, Cook CL, Haller MJ, Bernier AV, Silverstein JH, Westen SC, Elder JH

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

JMIR Diabetes 2019;4(3):e13724

DOI: 10.2196/13724

PMID: 31389338

PMCID: 6701161

Per the author's request the PDF is not available.