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Accepted for/Published in: Journal of Participatory Medicine

Date Submitted: Oct 20, 2018
Date Accepted: Feb 17, 2020
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

Precision For Value , Hennessey M, Precision For Value

From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

J Particip Med 2020;12(2):e12566

DOI: 10.2196/12566

PMID: 33064094

PMCID: 7434067

From Passive Patient to Engaged Partner: My journey with Parkinson’s

  • Precision For Value; 
  • Maureen Hennessey; 
  • Precision For Value

ABSTRACT

This patient narrative by Richard Higgins with Maureen Hennessey describes Richard's journey learning to live with a chronic and progressive illness. It begins with Richard's diagnosis and shares many of the lessons learned along the way. Richard copes daily with this condition, relying on the support and expertise of his wife and the treatment team he has assembled, while also encouragingly drawing on the skills and knowledge gained as a longtime running coach. Clinical commentary is provided at the article's conclusion, drafted by Richard's friend, Maureen Hennessey, PhD, CPCC, CPHQ, offering observations about the relevance of Richard's story to participatory medicine, and suggesting pertinent resources for patients and health care professionals.


 Citation

Please cite as:

Precision For Value , Hennessey M, Precision For Value

From Passive Patient to Engaged Partner: My Journey With Parkinson Disease

J Particip Med 2020;12(2):e12566

DOI: 10.2196/12566

PMID: 33064094

PMCID: 7434067

Per the author's request the PDF is not available.