Accepted for/Published in: Journal of Participatory Medicine
Date Submitted: Sep 26, 2018
Open Peer Review Period: Sep 30, 2018 - Nov 25, 2018
Date Accepted: Oct 18, 2019
(closed for review but you can still tweet)
The research challenges of including patients with aphasia in qualitative research methods for health service redesign
ABSTRACT
Background:
A project in North West Tasmania focussed on delivering improved stroke services through co-led redesign. The importance of including patients with communication difficulties (aphasia) in the qualitative research was highlighted, but required the adaption of traditional interview techniques.
Objective:
The aim of this paper is to describe the experiences of researchers involved in the interviewing of patients with aphasia and discuss a number of approaches appropriate for working with patients with aphasia in an interview situation.
Methods:
Qualitative research was undertaken utilising home interviews of post-stroke patients to gain insight into their in-hospital experience following their stroke. Patients were included in the interviews based on criteria determined through matrix sampling and did not exclude patients with aphasia.
Results:
Patients with aphasia are valuable contributors to qualitative health services research.
Conclusions:
The data from the interviews of patients with aphasia were collected using different means of communication and were found to be valuable in the overall experiential account of stroke patients. Clinical Trial: Not applicable
Citation
Per the author's request the PDF is not available.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.