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Accepted for/Published in: JMIR Aging

Date Submitted: Sep 26, 2018
Date Accepted: Apr 22, 2019

The final, peer-reviewed published version of this preprint can be found here:

Requirements for an Electronic Health Tool to Support the Process of Help Seeking by Caregivers of Functionally Impaired Older Adults: Co-Design Approach

Tremblay M, Latulippe K, Giguere AM, Provencher V, Poulin V, Dubé V, Guay M, Ethier S, Sévigny A, Carignan M, Giroux D

Requirements for an Electronic Health Tool to Support the Process of Help Seeking by Caregivers of Functionally Impaired Older Adults: Co-Design Approach

JMIR Aging 2019;2(1):e12327

DOI: 10.2196/12327

PMID: 31518279

PMCID: 6715009

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Requirements for an Electronic Health Tool to Support the Process of Help Seeking by Caregivers of Functionally Impaired Older Adults: Co-Design Approach

  • Mélanie Tremblay; 
  • Karine Latulippe; 
  • Anik MC Giguere; 
  • Véronique Provencher; 
  • Valérie Poulin; 
  • Véronique Dubé; 
  • Manon Guay; 
  • Sophie Ethier; 
  • Andrée Sévigny; 
  • Maude Carignan; 
  • Dominique Giroux

Background:

In Quebec, Canada, many public, community, and private organizations provide resources to caregivers of functionally impaired older adults. Nevertheless, these resources may be difficult for caregivers to find. A co-design study was conducted to address the gap between caregivers and access to resources. The purpose of this study was to support the process of help seeking by caregivers of functionally impaired older adults through electronic health (eHealth).

Objective:

The purpose of this study was to focus on the identification of functional and content requirements for an eHealth tool to support the help-seeking process of caregivers of functionally impaired older adults.

Methods:

This study uses a co-design process based on qualitative action research approach to develop an eHealth tool with health and social service professionals (HSSPs), community workers, and caregivers. The participants acted as co-designers in identifying requirements for the tool. A total of 4 design workshops and 1 advisory committee session were held in different locations in Quebec, Canada. Activities were videotaped and analyzed with a conceptual framework of user experience.

Results:

A total of 11 caregivers, 16 community workers, and 11 HSSPs participated in identifying the requirements for the eHealth tool. Several functional and content requirements were identified for each user need (19). Content requirements differed depending on the category of participant, corresponding to the concept of user segmentation in the design of information and communication technology. Nevertheless, there were disagreements among co-designers about specific functionalities, which included (1) functionalities related to the social Web, (2) functionalities related to the evaluation of resources for caregivers, and (3) functionalities related to the emerging technologies. Several co-design sessions were required to resolve disagreements.

Conclusions:

Co-designers (participants) were able to identify functional and content requirements for each of the previously identified needs; however, several discussions were required to achieve consensus. Decision making was influenced by identity, social context, and participants’ knowledge, and it is a challenge to reconcile the different perspectives. The findings stressed the importance of allowing more time to deal with the iterative aspect of the design activity, especially during the identification of requirements of an eHealth tool.

International Registered Report:

RR2-10.2196/11634


 Citation

Please cite as:

Tremblay M, Latulippe K, Giguere AM, Provencher V, Poulin V, Dubé V, Guay M, Ethier S, Sévigny A, Carignan M, Giroux D

Requirements for an Electronic Health Tool to Support the Process of Help Seeking by Caregivers of Functionally Impaired Older Adults: Co-Design Approach

JMIR Aging 2019;2(1):e12327

DOI: 10.2196/12327

PMID: 31518279

PMCID: 6715009

Per the author's request the PDF is not available.