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Accepted for/Published in: JMIR Aging

Date Submitted: Sep 20, 2018
Date Accepted: Apr 22, 2019

The final, peer-reviewed published version of this preprint can be found here:

Prioritizing the Needs of Caregivers of Older Adults to Support Their Help-Seeking Process as a First Step to Developing an eHealth Tool: The Technique for Research of Information by Animation of a Group of Experts (TRIAGE) Method

Latulippe K, Tremblay M, Poulin V, Provencher V, Giguere AM, Sévigny A, Dubé V, Éthier S, Guay M, Carignan M, Giroux D

Prioritizing the Needs of Caregivers of Older Adults to Support Their Help-Seeking Process as a First Step to Developing an eHealth Tool: The Technique for Research of Information by Animation of a Group of Experts (TRIAGE) Method

JMIR Aging 2019;2(1):e12271

DOI: 10.2196/12271

PMID: 31518269

PMCID: 6716487

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Prioritizing the Needs of Caregivers of Older Adults to Support Their Help-Seeking Process as a First Step to Developing an eHealth Tool: The Technique for Research of Information by Animation of a Group of Experts (TRIAGE) Method

  • Karine Latulippe; 
  • Mélanie Tremblay; 
  • Valérie Poulin; 
  • Véronique Provencher; 
  • Anik MC Giguere; 
  • Andrée Sévigny; 
  • Véronique Dubé; 
  • Sophie Éthier; 
  • Manon Guay; 
  • Maude Carignan; 
  • Dominique Giroux

Background:

Caregivers of functionally dependent older persons sometimes seek formal services to support their relatives. However, this process of help-seeking is complex.

Objective:

The overall aim of the study was to use a co-design approach to develop an electronic health (eHealth) tool to support caregivers in their process of help-seeking. This study presents the first step of the design phase, which aimed to prioritize the user needs to be considered during the development of an eHealth tool.

Methods:

A total of 3 groups of caregivers, community workers, and health and social service professionals participated in either a co-design session (1 or 2) or an advisory committee in 2 rural areas and 1 urban area. The needs identified in the academic literature and during a previous study were sorted (Technique for Research of Information by Animation of a Group of Experts [TRIAGE] method) by the participants (referred to in this study as co-designers) to obtain a consensus on those to be prioritized. Needs identified, grouped, and removed were ranked and compared.

Results:

Of the initial list of 32 needs, 12 were modified or merged, 3 added, and 7 deleted as the co-designers felt that the needs were poorly formulated, redundant, irrelevant, or impossible to meet. In the end, 19 needs were identified for the design of the eHealth tool.

Conclusions:

Many of the identified needs are informational (eg, having access to up-to-date information) and are probably met by existing tools. However, many others are emotional (eg, being encouraged to use the services) and offer an interesting challenge to eHealth tool development.

International Registered Report:

RR2-10.2196/11634


 Citation

Please cite as:

Latulippe K, Tremblay M, Poulin V, Provencher V, Giguere AM, Sévigny A, Dubé V, Éthier S, Guay M, Carignan M, Giroux D

Prioritizing the Needs of Caregivers of Older Adults to Support Their Help-Seeking Process as a First Step to Developing an eHealth Tool: The Technique for Research of Information by Animation of a Group of Experts (TRIAGE) Method

JMIR Aging 2019;2(1):e12271

DOI: 10.2196/12271

PMID: 31518269

PMCID: 6716487

Per the author's request the PDF is not available.