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Accepted for/Published in: Journal of Participatory Medicine

Date Submitted: Sep 4, 2018
Date Accepted: Jan 20, 2019

The final, peer-reviewed published version of this preprint can be found here:

Meaningful Partnerships: Stages of Development of a Patient and Family Advisory Council at a Family Medicine Residency Clinic

Schlaudecker JD, Goodnow K, Goroncy A, Hartmann R, Regan S, Rich M, Butler A, White C

Meaningful Partnerships: Stages of Development of a Patient and Family Advisory Council at a Family Medicine Residency Clinic

J Particip Med 2019;11(1):e12105

DOI: 10.2196/12105

PMID: 33055073

PMCID: 7434079

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Meaningful Partnerships: Stages of Development of a Patient and Family Advisory Council at a Family Medicine Residency Clinic

  • Jeffrey D Schlaudecker; 
  • Keesha Goodnow; 
  • Anna Goroncy; 
  • Reid Hartmann; 
  • Saundra Regan; 
  • Megan Rich; 
  • Adam Butler; 
  • Christopher White

Background:

Partnering with patients and families is a crucial step in optimizing health. A patient and family advisory council (PFAC) is a group of patients and family members working together collaboratively with providers and staff to improve health care.

Objective:

This study aimed to describe the creation of a PFAC within a family medicine residency clinic. To understand the successful development of a PFAC, challenges, potential barriers, and positive outcomes of a meaningful partnership will be reported.

Methods:

The stages of PFAC development include leadership team formation and initial training, PFAC member recruitment, and meeting launch. Following a description of each stage, outcomes are outlined and lessons learned are discussed. PFAC members completed an open-ended survey and participated in a focus group interview at the completion of the first year. Interviewees provided feedback regarding (1) favorite aspects or experiences, (2) PFAC impact on a family medicine clinic, and (3) future projects to improve care. Common themes will be presented.

Results:

The composition of the PFAC consisted of 18 advisors, including 8 patient and family advisors, 4 staff advisors, 4 resident physician advisors, and 2 faculty physician advisors. The average meeting attendance was 12 members over 11 meetings in the span of the first year. A total of 13 out of 13 (100%) surveyed participants were satisfied with their experience serving on the PFAC.

Conclusions:

PFACs provide a platform for patient engagement and an opportunity to drive home key concepts around collaboration within a residency training program. A framework for the creation of a PFAC, along with lessons learned, can be utilized to advise other residency programs in developing and evaluating meaningful PFACs.


 Citation

Please cite as:

Schlaudecker JD, Goodnow K, Goroncy A, Hartmann R, Regan S, Rich M, Butler A, White C

Meaningful Partnerships: Stages of Development of a Patient and Family Advisory Council at a Family Medicine Residency Clinic

J Particip Med 2019;11(1):e12105

DOI: 10.2196/12105

PMID: 33055073

PMCID: 7434079

Per the author's request the PDF is not available.