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Accepted for/Published in: JMIR Formative Research

Date Submitted: Jul 26, 2018
Open Peer Review Period: Jul 28, 2018 - Sep 3, 2018
Date Accepted: Oct 15, 2018
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Co-Design of a Consultation Audio-Recording Mobile App for People With Cancer: The SecondEars App

Lipson-Smith R, White F, White A, Serong L, Cooper G, Price-Bell G, Hyatt A

Co-Design of a Consultation Audio-Recording Mobile App for People With Cancer: The SecondEars App

JMIR Form Res 2019;3(1):e11111

DOI: 10.2196/11111

PMID: 30860487

PMCID: 6434400

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Co-Design of a Consultation Audio-Recording Mobile App for People With Cancer: The SecondEars App

  • Ruby Lipson-Smith; 
  • Fiona White; 
  • Alan White; 
  • Lesley Serong; 
  • Guy Cooper; 
  • Georgia Price-Bell; 
  • Amelia Hyatt

Background:

Many patients choose to audio-record their medical consultations so that they can relisten to them at home and share them with family. Consultation audio-recordings can improve patients’ recall and understanding of medical information and increase their involvement in decision making. A hospital-endorsed consultation audio-recording mobile app would provide patients with the permission and means to audio-record their consultations. The Theory of Planned Behavior provides a framework for understanding how patients can be encouraged to appropriately audio-record consultations.

Objective:

The aim of this study was to use a co-design process to develop a consultation audio-recording mobile app called SecondEars.

Methods:

App development began with stakeholder engagement, followed by a series of 6 co-design workshops and then user acceptance testing. Stakeholder engagement included advice from legal, information technology (IT), clinical and allied health leads; digital strategy; and medical records. he co-design workshops were attended by: patient consumers, members of the research team, IT staff, the app designers, clinicians, and staff from medical records. During workshops 1 to 4, the purpose and scope of the app were refined, possible pitfalls were addressed, and design features were discussed. The app designers then incorporated the results from these workshops to produce a wireframe mock-up of the proposed SecondEars app, which was presented for feedback at workshops 5 and 6.

Results:

The stakeholders identified 6 requirements for the app, including that it be patient driven, secure, clear in terms of legal responsibilities, linked to the patient’s medical record, and that it should require minimal upfront and ongoing resources. These requirements informed the scope of the co-design workshops. The workshops were attended by between 4 and 13 people. The workshop attendees developed a list of required features and suggestions for user interface design. The app developers used these requirements and recommendations to develop a prototype of the SecondEars app in iOS, which was then refined through user acceptance testing.

Conclusions:

The SecondEars app allows patients to have control and autonomy over audio-recording and sharing their consultations while maintaining privacy and safety for medical information and legal protection for clinicians. The app has been designed to have low upkeep and minimal impact on clinical processes. The SecondEars prototype is currently being tested with patients in a clinical setting.


 Citation

Please cite as:

Lipson-Smith R, White F, White A, Serong L, Cooper G, Price-Bell G, Hyatt A

Co-Design of a Consultation Audio-Recording Mobile App for People With Cancer: The SecondEars App

JMIR Form Res 2019;3(1):e11111

DOI: 10.2196/11111

PMID: 30860487

PMCID: 6434400

Per the author's request the PDF is not available.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.