JMIR Publications

ABSTRACT

Background:

Digital storytelling is an emerging approach in healthcare that blends narrative medicine with multimedia technology to share lived experiences of illness. While prior research has demonstrated benefits for creators of digital stories and for healthcare professionals who view them, less is known about how such stories impact patients and their families.

Objective:

This study explored how viewing a digital storytelling series about bipolar disorder influences patients and family members, particularly regarding personal recovery.

Methods:

We conducted a qualitative study using focus groups with patients diagnosed with bipolar I or II disorder and family members. Participants viewed a five-part digital storytelling series (Out of Darkness) and engaged in guided discussions. Data were analyzed using reflexive thematic analysis, with interpretation informed by the CHIME-D recovery framework (Connectedness, Hope, Identity, Meaning, Empowerment, and Difficulties/Trauma).

Results:

A total of 32 participants (17 patients and 15 family members) took part in 8 focus groups. These participants consistently described digital storytelling as emotionally impactful, relatable, and validating. Participant narratives reflected all CHIME domains. Participants described feelings of connectedness (“feeling seen and less alone”), hope, reduced stigma, strengthened identity, and greater empowerment in managing illness. The stories also prompted reflection on difficulties and trauma, which participants described as both challenging and healing. Family members reported enhanced empathy and understanding of their loved ones’ experiences.

Conclusions:

Digital storytelling appears to complement traditional psychoeducation by addressing emotional and experiential aspects of illness. It may support personal recovery in bipolar disorder by facilitating connection, hope, meaning, and agency while acknowledging the complexity of lived experience.