Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: JMIR Aging

Date Submitted: Apr 12, 2026
Date Accepted: Jun 18, 2026

The final, peer-reviewed published version of this preprint can be found here:

Daily Monitoring of Behavioral and Psychological Symptoms of Dementia in Residential Care: Mixed Methods Pilot Study

Malm J, Bielsten T, Nilsen C, Odzakovic E, Kåreholt I

Daily Monitoring of Behavioral and Psychological Symptoms of Dementia in Residential Care: Mixed Methods Pilot Study

JMIR Aging 2026;9:e98024

DOI: 10.2196/98024

PMID: 42492088

Daily Monitoring of Behavioral and Psychological Symptoms of Dementia in Residential Care: Mixed Methods Pilot Study

  • Johannes Malm; 
  • Therése Bielsten; 
  • Charlotta Nilsen; 
  • Elzana Odzakovic; 
  • Ingemar Kåreholt

ABSTRACT

Background:

Many clinically relevant aspects of health are expressed through behavior, affect, and interaction and therefore rely on observation rather than instrumental measurement. However, such observation-based information is often documented infrequently in routine care. Structured high-frequency observational data may offer more nuanced insight into behavioral variation over time. Dementia, and particularly Behavioral and Psychological Symptoms of Dementia (BPSD), provides a relevant case for examining this challenge because symptoms fluctuate across time and context. However, little is known about how daily symptom assessment can be embedded in everyday dementia care.

Objective:

To examine the feasibility of integrating structured daily observational routines, supported by digital documentation, into residential dementia care.

Methods:

A convergent mixed-methods design was applied across four nursing home units in southern Sweden. Quantitative data consisted of structured daily registrations collected by care staff over 90 days for eight residents with BPSD. Quantitative data were analyzed descriptively and interpreted using selected NASSS (Nonadoption, Abandonment, Scale-up, Spread, and Sustainability) domains (condition, technology, value proposition, adopters, and organization) to contextualize variation in symptom patterns, adherence, and registration practices. Semi-structured dyadic interviews were analyzed using deductive content analysis guided by the same NASSS domains. Integration occurred during both the analytical and interpretive stages.

Results:

A total of 21,993 registrations were completed, though engagement varied considerably among staff. The routine was experienced as technically straightforward and easy to incorporate into daily work. At the same time, challenges emerged, including time constraints, inconsistent participation, varying levels of interpretive confidence, and difficulties distinguishing among overlapping symptoms. Organizational routines, leadership support, and team stability were central to sustaining staff engagement.

Conclusions:

The high number of completed registrations indicates that daily observations can be integrated into daily dementia care. The participants perceived it as meaningful and useful. Feasibility was primarily influenced by organizational and interpretive factors rather than technical constraints. Further research should explore strategies to support shared routines and sustain engagement over time.


 Citation

Please cite as:

Malm J, Bielsten T, Nilsen C, Odzakovic E, Kåreholt I

Daily Monitoring of Behavioral and Psychological Symptoms of Dementia in Residential Care: Mixed Methods Pilot Study

JMIR Aging 2026;9:e98024

DOI: 10.2196/98024

PMID: 42492088

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.