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Commentary on Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities
Alec J. Calac;
Luis R. Gasca;
William H. Swain
ABSTRACT
We read this Viewpoint with great interest, and commend the Authors for their thoughtful discussion on tribal public authority, as well as barriers and facilitators to the responsible use of data generated by or collected from members of sovereign American Indian and Alaska Native (AI/AN) Nations [1]. Key topics not covered by the Authors that warrant discussion include tribal public health workforce development, data systems infrastructure, and federal facilitation of tribal self-governance programs. These additional topics will better contextualize the ethical, legal, and social issues specific to AI/AN public health practice.
Citation
Please cite as:
Calac AJ, Gasca LR, Swain WH
Responsible Governance of Tribal Public Health Data: Data Sharing Ethics and Common Challenges in the US Public Health System