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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: May 9, 2025
Date Accepted: May 26, 2025

The final, peer-reviewed published version of this preprint can be found here:

Responsible Governance of Tribal Public Health Data: Data Sharing Ethics and Common Challenges in the US Public Health System

Calac AJ, Gasca LR, Swain WH

Responsible Governance of Tribal Public Health Data: Data Sharing Ethics and Common Challenges in the US Public Health System

J Med Internet Res 2025;27:e77249

DOI: 10.2196/77249

PMID: 40537098

PMCID: 12202236

Commentary on Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

  • Alec J. Calac; 
  • Luis R. Gasca; 
  • William H. Swain

ABSTRACT

We read this Viewpoint with great interest, and commend the Authors for their thoughtful discussion on tribal public authority, as well as barriers and facilitators to the responsible use of data generated by or collected from members of sovereign American Indian and Alaska Native (AI/AN) Nations [1]. Key topics not covered by the Authors that warrant discussion include tribal public health workforce development, data systems infrastructure, and federal facilitation of tribal self-governance programs. These additional topics will better contextualize the ethical, legal, and social issues specific to AI/AN public health practice.


 Citation

Please cite as:

Calac AJ, Gasca LR, Swain WH

Responsible Governance of Tribal Public Health Data: Data Sharing Ethics and Common Challenges in the US Public Health System

J Med Internet Res 2025;27:e77249

DOI: 10.2196/77249

PMID: 40537098

PMCID: 12202236

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