JMIR Publications

ABSTRACT

Background:

Patients with long-term conditions, such as stroke, require regular follow-up visits to healthcare professionals to identify changes in symptoms. The digital previsit tool Strokehälsa (Strokehealth) has been designed to encourage individuals with stroke to reflect on stroke-related health concerns before a follow-up visit, thereby potentially enhancing their engagement during the visit. Strokehealth has previously been evaluated using a patient satisfaction survey (Part 1), but there remains a need to further explore patients’ perceptions and needs to optimize its functionality before broader implementation.

Objective:

The overall aim was to attain deeper insights into patients’ views and experiences of using the digital previsit tool Strokehealth before a follow-up visit. A secondary aim was to identify potential improvements to the tool based on these insights.

Methods:

For this qualitative study, patients who had used Strokehealth version 1.0 before a follow-up visit were recruited through the previous survey, between November 2020 and June 2021. Individual semi-structured interviews were conducted, and data were analyzed using reflexive thematic analysis. Subsequent workshops were held with people with first-hand experiences of stroke, other stakeholders (including health professionals and researchers), and a web consultant to finalize decisions regarding adjustments to be implemented in Strokehealth version 2.0.

Results:

Interviews were conducted with 33 participants (23 men and 10 women), with a median age of 67 years (range, 43-87 years). Analysis of the data regarding participants’ experiences of using Strokehealth revealed three overarching themes: a supporting tool for preparing dialogue and identifying needs; how Strokehealth is introduced and communicated affects perceived usability; and the wording and structure of Strokehealth influences the response process. The findings captured various aspects of receiving and using the digital previsit tool, highlighting its simplicity and purpose. Overall, Strokehealth was well-received and contributed to a sense of being well cared for. Participants generally found Strokehealth easy to use but also shared suggestions on how to better address stroke-related issues, such as mental fatigue or pain. These proposals were discussed during the subsequent workshop, which led to the implementation of Strokehealth version 2.0 within the Swedish healthcare system.

Conclusions:

The findings indicate that the freely available digital previsit tool Strokehealth was generally well-received by patients with stroke who were scheduled for follow-up visits in outpatient settings. Participants suggested minor improvements to the tool before its implementation in the national healthcare system. Clinical Trial: Researchweb 275135; https://www.researchweb.org/is/vgr/project/275135.