Accepted for/Published in: JMIR Rehabilitation and Assistive Technologies
Date Submitted: Dec 11, 2024
Open Peer Review Period: Jan 3, 2025 - Feb 28, 2025
Date Accepted: Mar 26, 2025
(closed for review but you can still tweet)
Family members’ experiences of F@ce 2.0, a person-centered ICT-supported intervention for stroke rehabilitation: a qualitative analysis.
ABSTRACT
Background:
Stroke often leads to long-term effects on daily activities and participation. Consequences impact not only stroke survivors but also their close networks and capturing their experiences is vital to intervention development. F@ce 2.0 is a person-centered, ICT-supported intervention for stroke rehabilitation and is currently being evaluated.
Objective:
The present study aims to describe family members’ experiences of being an informal caregiver to a stroke survivor participating in F@ce 2.0.
Methods:
Participants were family members (n=7) of stroke survivors participating in the intervention. Semi structured interviews were performed at two time-points, post intervention and at 6 months, rendering a total of 13 interviews. Data was analyzed using qualitative inductive content analysis.
Results:
Three over-arching categories were created; A change in life roles affecting activities and relationships, The importance of receiving and giving support in a time of distress and Involvement sparked by information- and communication technology.
Conclusions:
This study aligns with previous research delineating the effects of stroke on family members of stroke survivors. Participants highlighted the positive effects of the focus on daily activities within the intervention. Furthermore, the ICT component was perceived as a support in structuring rehabilitation. Participants did however suggest further development, both in terms of content and in terms of technology. Clinical Trial: NCT04351178
Citation
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Copyright
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