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Accepted for/Published in: Journal of Participatory Medicine

Date Submitted: Dec 2, 2024
Date Accepted: Jun 2, 2025

The final, peer-reviewed published version of this preprint can be found here:

Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation

Foresman G, Biro J, Tran A, McRae K, Kazi S, Schubel L, Visconti A, Gallagher W, Smith K, Giardina T, Haskell H, Miller K

Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation

J Particip Med 2025;17:e69564

DOI: 10.2196/69564

PMID: 40705399

PMCID: 12288699

Patient Perspectives on Artificial Intelligence in Healthcare: Insights for Diagnostic Communication and Tool Implementation

  • Garrett Foresman; 
  • Joshua Biro; 
  • Alberta Tran; 
  • Kate McRae; 
  • Sadaf Kazi; 
  • Laura Schubel; 
  • Adam Visconti; 
  • William Gallagher; 
  • Kelly Smith; 
  • Traber Giardina; 
  • Helen Haskell; 
  • Kristen Miller

ABSTRACT

Background:

Artificial intelligence (AI) Is rapidly transforming healthcare, offering potential benefits in diagnosis, treatment, and workflow efficiency. However, limited research explores patient perspectives on AI, especially in its role in diagnosis and communication. This study examines patient perceptions of various AI applications, focusing on the diagnostic process and communication.

Objective:

To examine patient perspectives on AI use in healthcare, particularly in diagnostic processes and communication, identifying key concerns, expectations, and opportunities to guide the development and implementation of AI tools.

Methods:

A co-design focus group workshop was conducted with 17 participants (patients and family members) aged 18-80. The session included interactive activities, discussions, and guideline development exploring five AI scenarios: (1) Portal Messaging, (2) Radiology Review, (3) Digital Scribe, (4) Virtual Human, (5) Decision Support. Thematic analysis was used to analyze transcripts and facilitator notes

Results:

Participants reported varying comfort levels with AI applications, with higher comfort for AI tools with less direct patient interaction, such as in the Digital Scribe and Radiology Review scenarios, and lower comfort for those with more direct interaction, such as in the Virtual Human scenario. Five key themes regarding patient perspectives of AI emerged: (1) concerns around model development and accuracy, (2) usability in supporting diagnostic processes and communication, (3) expectations around disclosure of AI usage, (4) excitement and opportunities for AI to better address patient needs, (5) patient concerns around data protection, privacy, and security. Participants emphasized the importance of transparency in AI development validation, preferred AI as a supplementary tool rather than a replacement for human clinicians and stressed the need for clear communication about AI’s role in their care. They also highlighted the potential for AI to enhance patient understanding and engagement while expressing concerns about data security and privacy.

Conclusions:

This study highlights the importance of incorporating patient perspectives in the design and implementation of AI tools in healthcare. Transparency, human oversight, clear communication, and data privacy are crucial for patient trust and acceptance of AI in diagnostic processes. These findings inform strategies for individual clinicians, healthcare organizations, and policymakers to ensure responsible and patient-centered AI deployment in healthcare.


 Citation

Please cite as:

Foresman G, Biro J, Tran A, McRae K, Kazi S, Schubel L, Visconti A, Gallagher W, Smith K, Giardina T, Haskell H, Miller K

Patient Perspectives on Artificial Intelligence in Health Care: Focus Group Study for Diagnostic Communication and Tool Implementation

J Particip Med 2025;17:e69564

DOI: 10.2196/69564

PMID: 40705399

PMCID: 12288699

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