Accepted for/Published in: JMIR Formative Research
Date Submitted: Nov 4, 2024
Date Accepted: Dec 18, 2024
Identifying High Priority Ethical Challenges for Precision Emergency Medicine: Nominal Group Study
ABSTRACT
Background:
Precision medicine is a rapidly progressing avenue to providing the right care to the right patient at the right time and spans all medical fields and specialties. However, given its reliance on computation and timely, accurate information, actualizing precision medicine within the emergency department and its “anyone, anywhere, anytime” approach presents unique challenges which could exacerbate disparities rather than improve care. Furthermore, the data used to develop precision medicine therapies lack full representation from all patient populations and communities, limiting their effectiveness.
Objective:
To identify high priority ethical concerns facing the implementation of precision medicine in the emergency department.
Methods:
We performed a qualitative, nominal group technique study of emergency physicians with prior knowledge of precision medicine concepts.
Results:
Twelve emergency physicians identified 91 ethical concerns which were organized into a framework with three themes: values, privacy, and justice. The framework identified the need to address these themes across three time points of the precision medicine process: acquisition of data, actualization in the care setting, and the after effects of its use.
Conclusions:
Precision medicine may help to improve the quality of care provided in the emergency department, but significant hurdles exist. Our framework helps to identify high-yield ethical challenges that could serve as focus areas for future research and policy in order to guide the effective implementation of precision medicine in the emergency department.
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.