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Insights from a Mixed-Methods Analysis of Three Health Technologies used in Patients With Parkinson’s Disease: The Patients’ Perspective
Daniel Pérez-Rangel;
Mariana H.G. Monje;
Sylvie Grosjean;
Martin Srp;
Laura Antunes;
Raquel Bouça-Machado;
Ricardo Cacho;
Sergio Domínguez;
John Inocentes;
Timothy Lynch;
Argyri Tsakanika;
Dimitrios Fotiadis;
George Rigas;
Evžen Růžička;
Joaquim Ferreira;
Angelo Antonini;
Norberto Malpica;
Tiago Mestre;
Álvaro Sánchez-Ferro;
iCARE-PD Consortium
ABSTRACT
Background:
We are transitioning to a patient-centered integrated care model in Parkinson's disease (PD), where technology can play a crucial role. The concept of 'technology-enabled care' (TEC) applies to diagnosis, tracking clinical progression, patient education for self-care and care team communication among other things. However, there are still gaps in the framework for creating and evaluating patient-centered TEC solutions.
Objective:
To evaluate the usability and acceptability of three health technologies for PD and discuss the significance of the results.
Methods:
A multicenter international study was conducted between December 2020 and September 2023, involving five tertiary PD centers. The study utilized the System Usability Scale (SUS) as the primary quantitative outcome measure. A survey was developed to comprehensively evaluate usability and acceptability and qualitative analyses with thematic evaluation was conducted.
Results:
A total of 43 people with Parkinson´s disease (PwP) (15 females) were evaluated with a median age of 67.0 years (IQR:59.9-71.5), and a median time since diagnosis of 9.6 years (IQR:5.0-13.7). The three health technologies were found to be within acceptable usability values (median SUS values ranging from 74.0 to 82.5), with good user acceptance and interest in future use. Qualitative data analyses suggests that PwP valued how confident they felt with the use of technology and recognized their value in living with PD. Technical features such as the need of technical support, clear instructions, and easy-to-understand reports were mentioned as essential aspects to PwP.
Conclusions:
In our study, we showcase the value of patient’s perspective in the development of health technologies, identifying positive user experiences and areas of improvement. Addressing usability concerns and ensuring robust technical support are vital for enhancing user satisfaction and advancing patient-centered healthcare technology implementation to improve disease management.
Citation
Please cite as:
Pérez-Rangel D, H.G. Monje M, Grosjean S, Srp M, Antunes L, Bouça-Machado R, Cacho R, Domínguez S, Inocentes J, Lynch T, Tsakanika A, Fotiadis D, Rigas G, Růžička E, Ferreira J, Antonini A, Malpica N, Mestre T, Sánchez-Ferro , iCARE-PD Consortium
Insights From a Mixed Methods Analysis of 3 Health Technologies Used in Patients With Parkinson Disease: Mixed Methods Study