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Accepted for/Published in: Asian/Pacific Island Nursing Journal

Date Submitted: Jul 16, 2024
Date Accepted: Nov 6, 2024

The final, peer-reviewed published version of this preprint can be found here:

Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Nakamura K, Hamada Y, Fujita A, Morokuma S

Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Asian Pac Isl Nurs J 2024;8:e63946

DOI: 10.2196/63946

PMID: 39693614

PMCID: 11694042

Factors that affect the Quality of Life in Mothers Caring for Children with Medical Needs at Home

  • Kanako Nakamura; 
  • Yuko Hamada; 
  • Ayaka Fujita; 
  • Seiichi Morokuma

ABSTRACT

Background:

The number of children requiring daily medical care is on the rise, with many being cared for at home. This situation places a significant burden on mothers, who often serve as the primary caregivers.

Objective:

To clarify the relationship between the caregiving burden and quality of life of mothers of children requiring home medical care; and to identify factors influencing the quality of life of these mothers.

Methods:

A questionnaire survey was conducted among mothers of children needing medical care at home, with 46 participants responding. The questionnaire included items regarding the child's condition, the mother's situation, caregiving burden, and the WHOQOL-26 scale.

Results:

A weak negative correlation (r = -0.4912, p < 0.01) was observed between the WHOQOL-26 and caregiving burden scales. Factors influencing the quality of life of mothers included whether the child attended daycare or school (β = 0.274, p < 0.05), the duration of home care duration (β = 0.305, p < 0.05), and the presence or absence of position changes (β = 0.41, p < 0.001). The presence or absence of position changes had the most significant impact (Adjusted R2 = 0.327).

Conclusions:

There is a weak negative correlation between the WHOQOL-26 and caregiving burden scales. The most significant factor affecting the quality of life of mothers of children requiring home medical care is the presence or absence of positional changes. Support aimed at enhancing the quality of life of these mothers is anticipated.


 Citation

Please cite as:

Nakamura K, Hamada Y, Fujita A, Morokuma S

Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Asian Pac Isl Nurs J 2024;8:e63946

DOI: 10.2196/63946

PMID: 39693614

PMCID: 11694042

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