JMIR Publications

ABSTRACT

Background:

The COVID-19 pandemic was a paradigm shift in global healthcare. This situation highlighted the role of telemedicine in adapting to the care requirements of pediatric patients and their families by facilitating remote consultations and ensuring continuity of care.

Objective:

We aim to establish the usefulness of a telemedicine program for caregivers of complex chronic children.

Methods:

We performed a quasi-experimental pre-post intervention study of a telemedicine program, regarding healthcare system use and caregiver quality of life, and comparing two periods: before and during the COVID-19 pandemic. The study was performed on caregivers of complex chronic children followed in a specialized unit.

Results:

34 families were included. The mean number of visits per year was higher in the pre-intervention period for both primary care consultations (P=.03) and hospital-specialized medical consultations (P=.03). The number of emergency room visits per year was lower in the pandemic period compared to the pre-pandemic period (P=.01). In both groups, an improvement in caregiver quality of life at 12 months was detected (P=.03). However, the Rosenberg self-esteem scale score of the primary caregiver was significantly lower at three months compared to the baseline (P=.03).

Conclusions:

Our study demonstrates that the use of a telemedicine program resulted in a decrease in scheduled face-to-face care and a reduction in the number of emergency department visits. Regarding the caregiver quality of life, it was worse in those families who had a child affected by a neurological condition or whose child was older when the disease was diagnosed.